How can we reduce psychological burden for patients of amyotrophic lateral sclerosis and their family caregivers? – Insights from the participatory multi-method study “potentiALS”

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This study explores the psychosocial support needs of individuals with amyotrophic lateral sclerosis (ALS) and their family caregivers through a participatory multi-method approach involving patients, caregivers, and healthcare professionals. It evaluates preferences for four therapeutic frameworks—cognitive behavioral therapy, psychodynamic therapy, acceptance and commitment therapy, and meaning-centered therapy—using quantitative surveys and structured group feedback sessions. The findings indicate that while both groups value emotional support and open dialogue, there are distinct preferences regarding therapy formats and specific challenges related to speech limitations and time constraints.

ID
070774e0656b4ced
Source org
PubMed Central
Author
Svenja Heyne (Leipzig University), Adelina Kuzmanova (Leipzig University), Peter Esser (Klinik für Psychosomatik), Katharina Linse (University Hospital Carl Gustav Carus), René Günther (German Center for Neurodegenerative Diseases), Anja Mehnert (Leipzig University), Moritz Metelmann (Leipzig University)
Published
2025-10-07
OA status
gold
DOI
10.1186/s12883-025-04440-w
PMID
Not recorded
PMCID
Not recorded
Citations
1

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BibTeX

@article{allodium:070774e0656b4ced,
  title = {How can we reduce psychological burden for patients of amyotrophic lateral sclerosis and their family caregivers? – Insights from the participatory multi-method study “potentiALS”},
  author = {Svenja Heyne and Adelina Kuzmanova and Peter Esser and Katharina Linse and René Günther and Anja Mehnert and Moritz Metelmann},
  year = {2025},
  journal = {PubMed Central},
  doi = {10.1186/s12883-025-04440-w},
  url = {https://doi.org/10.1186/s12883-025-04440-w}
}

RIS

TY  - JOUR
TI  - How can we reduce psychological burden for patients of amyotrophic lateral sclerosis and their family caregivers? – Insights from the participatory multi-method study “potentiALS”
AU  - Heyne, Svenja
AU  - Kuzmanova, Adelina
AU  - Esser, Peter
AU  - Linse, Katharina
AU  - Günther, René
AU  - Mehnert, Anja
AU  - Metelmann, Moritz
PY  - 2025
PB  - PubMed Central
DO  - 10.1186/s12883-025-04440-w
UR  - https://doi.org/10.1186/s12883-025-04440-w
ER  -

APA

Heyne, S., Kuzmanova, A., Esser, P., Linse, K., Günther, R., Mehnert, A., & Metelmann, M. (2025). How can we reduce psychological burden for patients of amyotrophic lateral sclerosis and their family caregivers? – Insights from the participatory multi-method study “potentiALS”. PubMed Central. https://doi.org/10.1186/s12883-025-04440-w

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