Quantifying the impact of symptomatic acute hepatic porphyria on well‐being via patient‐reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (<scp>POWER</scp>) study

Amy Dickey, Kristen Wheeden, Desiree Lyon, Sue Burrell, Sean Hegarty, Rocco Falchetto, Edrin R. Williams, Jasmin Barman‐Aksözen, Marc DeCongelio, Alison Bulkley, Joana E. Matos, Tarek Mnif, Jordanna Mora, John J. Ko, Stephen Meninger, Stephen Lombardelli, Danielle Nance

Open source

DOI: 10.1002/jmd2.12343
Published: 2022-10-18
Container: JIMD Reports
Publisher: Wiley
Open access: unknown

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Cite this work

BibTeX

@article{allodium:10.1002/jmd2.12343,
  title = {Quantifying the impact of symptomatic acute hepatic porphyria on well‐being via patient‐reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (<scp>POWER</scp>) study},
  author = {Amy Dickey and Kristen Wheeden and Desiree Lyon and Sue Burrell and Sean Hegarty and Rocco Falchetto and Edrin R. Williams and Jasmin Barman‐Aksözen and Marc DeCongelio and Alison Bulkley and Joana E. Matos and Tarek Mnif and Jordanna Mora and John J. Ko and Stephen Meninger and Stephen Lombardelli and Danielle Nance},
  year = {2022},
  journal = {JIMD Reports},
  doi = {10.1002/jmd2.12343},
  url = {https://doi.org/10.1002/jmd2.12343}
}

RIS

TY  - JOUR
TI  - Quantifying the impact of symptomatic acute hepatic porphyria on well‐being via patient‐reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (<scp>POWER</scp>) study
AU  - Amy Dickey
AU  - Kristen Wheeden
AU  - Desiree Lyon
AU  - Sue Burrell
AU  - Sean Hegarty
AU  - Rocco Falchetto
AU  - Edrin R. Williams
AU  - Jasmin Barman‐Aksözen
AU  - Marc DeCongelio
AU  - Alison Bulkley
AU  - Joana E. Matos
AU  - Tarek Mnif
AU  - Jordanna Mora
AU  - John J. Ko
AU  - Stephen Meninger
AU  - Stephen Lombardelli
AU  - Danielle Nance
PY  - 2022
JO  - JIMD Reports
DO  - 10.1002/jmd2.12343
UR  - https://doi.org/10.1002/jmd2.12343
ER  -

APA

Dickey, A., Wheeden, K., Lyon, D., Burrell, S., Hegarty, S., Falchetto, R., Williams, E. R., Barman‐Aksözen, J., DeCongelio, M., Bulkley, A., Matos, J. E., Mnif, T., Mora, J., Ko, J. J., Meninger, S., Lombardelli, S., & Nance, D. (2022). Quantifying the impact of symptomatic acute hepatic porphyria on well‐being via patient‐reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (<scp>POWER</scp>) study. JIMD Reports. https://doi.org/10.1002/jmd2.12343

Source records

crossref · retrieved 2026-09-26T16:46:53.121Z