Integrating optimal patient-centered care: patient- and family-reported experiences after complex treatment for rare diseases.
- DOI
- 10.1007/s12519-026-01089-4
- Published
- 2026 Sep 19
- Container
- World journal of pediatrics : WJP
- Publisher
- Not recorded
- Open access
- unknown
Credibility signals
limited evidence Score 43/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.
Show all credibility signals
- cautionDOI registered: No matching Crossref record was present in this response.
- cautionDOI resolves: No matching Crossref record was present in this response.
- not scoredDirectory of Open Access Journals: No matching DOAJ record was present in this response. No allow-list match; this is not evidence of low credibility.
- not scoredMEDLINE indexed: Not checked or no result supplied; no credibility inference made.
- not scoredOpenAlex core source: Not checked or no result supplied; no credibility inference made.
- not scoredKnown publisher allow-list: Not checked or no result supplied; no credibility inference made.
- not scoredROR affiliation: Not checked or no result supplied; no credibility inference made.
- not scoredRetraction Watch retraction: No retraction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch expression of concern: No expression of concern notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch correction: No correction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch reinstatement: No reinstatement notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredOpen access status: Not checked or no result supplied; no credibility inference made.
- not scoredPublication license: Not checked or no result supplied; no credibility inference made.
- not scoredPublication version: A publication version was supplied but is not scored.
- cautionMetadata completeness: 5 of 6 scored descriptive metadata groups are present; missing fields increase uncertainty.
Cite this work
BibTeX
@article{allodium:10.1007/s12519-026-01089-4,
title = {Integrating optimal patient-centered care: patient- and family-reported experiences after complex treatment for rare diseases.},
author = {Tijssens FL and Kies P and de Ridder L and de Pagter APJ and van Klink JMM and Life-Course Care, Follow-up Research Network (LEEF)},
year = {2026},
journal = {World journal of pediatrics : WJP},
doi = {10.1007/s12519-026-01089-4},
url = {https://doi.org/10.1007/s12519-026-01089-4}
}RIS
TY - JOUR TI - Integrating optimal patient-centered care: patient- and family-reported experiences after complex treatment for rare diseases. AU - Tijssens FL AU - Kies P AU - de Ridder L AU - de Pagter APJ AU - van Klink JMM AU - Life-Course Care, Follow-up Research Network (LEEF) PY - 2026 JO - World journal of pediatrics : WJP DO - 10.1007/s12519-026-01089-4 UR - https://doi.org/10.1007/s12519-026-01089-4 ER -
APA
FL, T., P, K., L, D. R., APJ, D. P., JMM, V. K., & (LEEF), L. C. F. R. N. (2026). Integrating optimal patient-centered care: patient- and family-reported experiences after complex treatment for rare diseases.. World journal of pediatrics : WJP. https://doi.org/10.1007/s12519-026-01089-4
Source records
- pubmed · retrieved 2026-09-25T21:41:17.658Z