Crisis readiness for rare disease populations: learnings and recommendations by the European Reference Networks

Hélène Dollfus, Alexis Arzimanoglou, Teresinha Evangelista, Holm Graessner, Marta Mosca, Luca Sangiorgi, Jean-Yves Blay, Christine Bodemer, Pierre Fenaux, Francisco Hernández, Guillaume Jondeau, Marjolijn J.L. Ligtenberg, Ansgar W. Lohse, Irene M.J. Mathijssen, Peter Mulders, Alberto M. Pereira, Franz Schaefer, Joost F. Swart, Alain Verloes, Thomas O.F. Wagner, René M.H. Wijnen, Arthur A.M. Wilde, María del Mar Mañú Pereira, Ruth Ladenstein, Maurizio Scarpa

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DOI: 10.1016/j.lanepe.2026.101801
Published: 2026-10
Container: The Lancet Regional Health - Europe
Publisher: Elsevier BV
Open access: unknown

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Cite this work

BibTeX

@article{allodium:10.1016/j.lanepe.2026.101801,
  title = {Crisis readiness for rare disease populations: learnings and recommendations by the European Reference Networks},
  author = {Hélène Dollfus and Alexis Arzimanoglou and Teresinha Evangelista and Holm Graessner and Marta Mosca and Luca Sangiorgi and Jean-Yves Blay and Christine Bodemer and Pierre Fenaux and Francisco Hernández and Guillaume Jondeau and Marjolijn J.L. Ligtenberg and Ansgar W. Lohse and Irene M.J. Mathijssen and Peter Mulders and Alberto M. Pereira and Franz Schaefer and Joost F. Swart and Alain Verloes and Thomas O.F. Wagner and René M.H. Wijnen and Arthur A.M. Wilde and María del Mar Mañú Pereira and Ruth Ladenstein and Maurizio Scarpa},
  year = {2026},
  journal = {The Lancet Regional Health - Europe},
  doi = {10.1016/j.lanepe.2026.101801},
  url = {https://doi.org/10.1016/j.lanepe.2026.101801}
}

RIS

TY  - JOUR
TI  - Crisis readiness for rare disease populations: learnings and recommendations by the European Reference Networks
AU  - Hélène Dollfus
AU  - Alexis Arzimanoglou
AU  - Teresinha Evangelista
AU  - Holm Graessner
AU  - Marta Mosca
AU  - Luca Sangiorgi
AU  - Jean-Yves Blay
AU  - Christine Bodemer
AU  - Pierre Fenaux
AU  - Francisco Hernández
AU  - Guillaume Jondeau
AU  - Marjolijn J.L. Ligtenberg
AU  - Ansgar W. Lohse
AU  - Irene M.J. Mathijssen
AU  - Peter Mulders
AU  - Alberto M. Pereira
AU  - Franz Schaefer
AU  - Joost F. Swart
AU  - Alain Verloes
AU  - Thomas O.F. Wagner
AU  - René M.H. Wijnen
AU  - Arthur A.M. Wilde
AU  - María del Mar Mañú Pereira
AU  - Ruth Ladenstein
AU  - Maurizio Scarpa
PY  - 2026
JO  - The Lancet Regional Health - Europe
DO  - 10.1016/j.lanepe.2026.101801
UR  - https://doi.org/10.1016/j.lanepe.2026.101801
ER  -

APA

Dollfus, H., Arzimanoglou, A., Evangelista, T., Graessner, H., Mosca, M., Sangiorgi, L., Blay, J., Bodemer, C., Fenaux, P., Hernández, F., Jondeau, G., Ligtenberg, M. J., Lohse, A. W., Mathijssen, I. M., Mulders, P., Pereira, A. M., Schaefer, F., Swart, J. F., Verloes, A., Wagner, T. O., Wijnen, R. M., Wilde, A. A., Pereira, M. D. M. M., Ladenstein, R., & Scarpa, M. (2026). Crisis readiness for rare disease populations: learnings and recommendations by the European Reference Networks. The Lancet Regional Health - Europe. https://doi.org/10.1016/j.lanepe.2026.101801

Source records

crossref · retrieved 2026-09-26T06:10:08.865Z