For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health-Related Quality of Life in Rare Liver Diseases.

Alary A, Sattoe J, Sifer-Rivière L, Aujoulat I, Mira J, Bernegger G, Danesi G, Gil-Hernández E, Ballester P, Guilabert M, Nipius D, Kousemaker-Nieuwdorp J, van der Meer-Kuiper K, Cannavò S, Drossart C, Veniat L, Zufferey MC, Dumas A

Open source

DOI: 10.1111/hex.70721
Published: 2026 Jun
Container: Health expectations : an international journal of public participation in health care and health policy
Publisher: Not recorded
Open access: yes

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Cite this work

BibTeX

@article{allodium:10.1111/hex.70721,
  title = {For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health-Related Quality of Life in Rare Liver Diseases.},
  author = {Alary A and Sattoe J and Sifer-Rivière L and Aujoulat I and Mira J and Bernegger G and Danesi G and Gil-Hernández E and Ballester P and Guilabert M and Nipius D and Kousemaker-Nieuwdorp J and van der Meer-Kuiper K and Cannavò S and Drossart C and Veniat L and Zufferey MC and Dumas A},
  year = {2026},
  journal = {Health expectations : an international journal of public participation in health care and health policy},
  doi = {10.1111/hex.70721},
  url = {https://doi.org/10.1111/hex.70721}
}

RIS

TY  - JOUR
TI  - For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health-Related Quality of Life in Rare Liver Diseases.
AU  - Alary A
AU  - Sattoe J
AU  - Sifer-Rivière L
AU  - Aujoulat I
AU  - Mira J
AU  - Bernegger G
AU  - Danesi G
AU  - Gil-Hernández E
AU  - Ballester P
AU  - Guilabert M
AU  - Nipius D
AU  - Kousemaker-Nieuwdorp J
AU  - van der Meer-Kuiper K
AU  - Cannavò S
AU  - Drossart C
AU  - Veniat L
AU  - Zufferey MC
AU  - Dumas A
PY  - 2026
JO  - Health expectations : an international journal of public participation in health care and health policy
DO  - 10.1111/hex.70721
UR  - https://doi.org/10.1111/hex.70721
ER  -

APA

A, A., J, S., L, S., I, A., J, M., G, B., G, D., E, G., P, B., M, G., D, N., J, K., K, V. D. M., S, C., C, D., L, V., MC, Z., & A, D. (2026). For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health-Related Quality of Life in Rare Liver Diseases.. Health expectations : an international journal of public participation in health care and health policy. https://doi.org/10.1111/hex.70721

Source records

pubmed · retrieved 2026-09-26T20:16:37.997Z
europe-pmc · retrieved 2026-09-26T20:16:38.010Z
doaj · retrieved 2026-09-26T20:16:38.007Z