Capturing Real‐World Rare Disease Patient Journeys: Are Current Methodologies Sufficient for Informed Healthcare Decisions?

Kristen A. Cribbs, Lucas T. A. Blackmore, Asia R. Banks, Da Sol Kim, Betsy J. Lahue

Open source

DOI
10.1111/jep.70010
Published
2025-02
Container
Journal of Evaluation in Clinical Practice
Publisher
Wiley
Open access
unknown

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BibTeX

@article{allodium:10.1111/jep.70010,
  title = {Capturing Real‐World Rare Disease Patient Journeys: Are Current Methodologies Sufficient for Informed Healthcare Decisions?},
  author = {Kristen A. Cribbs and Lucas T. A. Blackmore and Asia R. Banks and Da Sol Kim and Betsy J. Lahue},
  year = {2025},
  journal = {Journal of Evaluation in Clinical Practice},
  doi = {10.1111/jep.70010},
  url = {https://doi.org/10.1111/jep.70010}
}

RIS

TY  - JOUR
TI  - Capturing Real‐World Rare Disease Patient Journeys: Are Current Methodologies Sufficient for Informed Healthcare Decisions?
AU  - Kristen A. Cribbs
AU  - Lucas T. A. Blackmore
AU  - Asia R. Banks
AU  - Da Sol Kim
AU  - Betsy J. Lahue
PY  - 2025
JO  - Journal of Evaluation in Clinical Practice
DO  - 10.1111/jep.70010
UR  - https://doi.org/10.1111/jep.70010
ER  - 

APA

Cribbs, K. A., Blackmore, L. T. A., Banks, A. R., Kim, D. S., & Lahue, B. J. (2025). Capturing Real‐World Rare Disease Patient Journeys: Are Current Methodologies Sufficient for Informed Healthcare Decisions?. Journal of Evaluation in Clinical Practice. https://doi.org/10.1111/jep.70010

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