'Alone on our NF1 island': a patient-led mixed-method survey study to understand the care pathway for neurofibromatosis type 1 (NF1) patients in the UK.
- DOI
- 10.1136/bmjoq-2025-003383
- Published
- 2025 Aug 28
- Container
- BMJ open quality
- Publisher
- Not recorded
- Open access
- yes
Credibility signals
limited evidence Score 45/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.
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Cite this work
BibTeX
@article{allodium:10.1136/bmjoq-2025-003383,
title = {'Alone on our NF1 island': a patient-led mixed-method survey study to understand the care pathway for neurofibromatosis type 1 (NF1) patients in the UK.},
author = {Ju S and Cowley L and Jain I and Martin V and Day E and Smith R and Morgan T},
year = {2025},
journal = {BMJ open quality},
doi = {10.1136/bmjoq-2025-003383},
url = {https://doi.org/10.1136/bmjoq-2025-003383}
}RIS
TY - JOUR TI - 'Alone on our NF1 island': a patient-led mixed-method survey study to understand the care pathway for neurofibromatosis type 1 (NF1) patients in the UK. AU - Ju S AU - Cowley L AU - Jain I AU - Martin V AU - Day E AU - Smith R AU - Morgan T PY - 2025 JO - BMJ open quality DO - 10.1136/bmjoq-2025-003383 UR - https://doi.org/10.1136/bmjoq-2025-003383 ER -
APA
S, J., L, C., I, J., V, M., E, D., R, S., & T, M. (2025). 'Alone on our NF1 island': a patient-led mixed-method survey study to understand the care pathway for neurofibromatosis type 1 (NF1) patients in the UK.. BMJ open quality. https://doi.org/10.1136/bmjoq-2025-003383
Source records
- pubmed · retrieved 2026-09-27T15:03:22.554Z