Patient-centred understanding of quality of life, symptoms, health equity in cystic fibrosis (PULSE-CF): study protocol for an observational study

Elisabeth P Dellon, Dio Kavalieratos, Min Huang, Nicholas A Giordano, Anne Fitzpatrick, Scott Gillespie, Jane Lowers, Cade Hovater, Arlene Stecenko, Joshua D Chandler, Chris Driggers, Rishikesan Kamaleswaran, Alexander Evan Soltoff, Kasey Seymour, Brandi Middour-Oxler, Reva Crandall, Ryan A Harris

Open source

DOI
10.1136/bmjresp-2026-004440
Published
September
Container
BMJ Open Respiratory Research
Publisher
Not recorded
Open access
yes

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BibTeX

@article{allodium:10.1136/bmjresp-2026-004440,
  title = {Patient-centred understanding of quality of life, symptoms, health equity in cystic fibrosis (PULSE-CF): study protocol for an observational study},
  author = {Elisabeth P Dellon and Dio Kavalieratos and Min Huang and Nicholas A Giordano and Anne Fitzpatrick and Scott Gillespie and Jane Lowers and Cade Hovater and Arlene Stecenko and Joshua D Chandler and Chris Driggers and Rishikesan Kamaleswaran and Alexander Evan Soltoff and Kasey Seymour and Brandi Middour-Oxler and Reva Crandall and Ryan A Harris},
  year = {2026},
  journal = {BMJ Open Respiratory Research},
  doi = {10.1136/bmjresp-2026-004440},
  url = {https://doi.org/10.1136/bmjresp-2026-004440}
}

RIS

TY  - JOUR
TI  - Patient-centred understanding of quality of life, symptoms, health equity in cystic fibrosis (PULSE-CF): study protocol for an observational study
AU  - Elisabeth P Dellon
AU  - Dio Kavalieratos
AU  - Min Huang
AU  - Nicholas A Giordano
AU  - Anne Fitzpatrick
AU  - Scott Gillespie
AU  - Jane Lowers
AU  - Cade Hovater
AU  - Arlene Stecenko
AU  - Joshua D Chandler
AU  - Chris Driggers
AU  - Rishikesan Kamaleswaran
AU  - Alexander Evan Soltoff
AU  - Kasey Seymour
AU  - Brandi Middour-Oxler
AU  - Reva Crandall
AU  - Ryan A Harris
PY  - 2026
JO  - BMJ Open Respiratory Research
DO  - 10.1136/bmjresp-2026-004440
UR  - https://doi.org/10.1136/bmjresp-2026-004440
ER  - 

APA

Dellon, E. P., Kavalieratos, D., Huang, M., Giordano, N. A., Fitzpatrick, A., Gillespie, S., Lowers, J., Hovater, C., Stecenko, A., Chandler, J. D., Driggers, C., Kamaleswaran, R., Soltoff, A. E., Seymour, K., Middour-Oxler, B., Crandall, R., & Harris, R. A. (2026). Patient-centred understanding of quality of life, symptoms, health equity in cystic fibrosis (PULSE-CF): study protocol for an observational study. BMJ Open Respiratory Research. https://doi.org/10.1136/bmjresp-2026-004440

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