The Dilemma between Data Protection and Data Altruism within the Context of Rare Diseases in the European Health Data Space

Laura Centeno Casado

Open source

DOI: 10.1163/15718093-bja10169
Published: 2026-04-17
Container: European Journal of Health Law
Publisher: Walter de Gruyter GmbH
Open access: unknown

Credibility signals

uncertain Score 64/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.

Show all credibility signals

supportingDOI registered: A matching record was returned by Crossref. Source: Crossref; license: CC0 metadata
supportingDOI resolves: A matching record was returned by Crossref. Source: Crossref; license: CC0 metadata
not scoredDirectory of Open Access Journals: No matching DOAJ record was present in this response. No allow-list match; this is not evidence of low credibility. Source: DOAJ; license: CC0
not scoredMEDLINE indexed: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredOpenAlex core source: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredKnown publisher allow-list: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredROR affiliation: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredRetraction Watch retraction: No retraction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch expression of concern: No expression of concern notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch correction: No correction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch reinstatement: No reinstatement notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredOpen access status: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredPublication license: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredPublication version: A publication version was supplied but is not scored. Source: Normalized work metadata; license: Caller-provided; provenance license not supplied to scorer
supportingMetadata completeness: All 6 scored descriptive metadata groups are present. Source: Normalized work metadata; license: Caller-provided; provenance license not supplied to scorer

Cite this work

BibTeX

@article{allodium:10.1163/15718093-bja10169,
  title = {The Dilemma between Data Protection and Data Altruism within the Context of Rare Diseases in the European Health Data Space},
  author = {Laura Centeno Casado},
  year = {2026},
  journal = {European Journal of Health Law},
  doi = {10.1163/15718093-bja10169},
  url = {https://doi.org/10.1163/15718093-bja10169}
}

RIS

TY  - JOUR
TI  - The Dilemma between Data Protection and Data Altruism within the Context of Rare Diseases in the European Health Data Space
AU  - Laura Centeno Casado
PY  - 2026
JO  - European Journal of Health Law
DO  - 10.1163/15718093-bja10169
UR  - https://doi.org/10.1163/15718093-bja10169
ER  -

APA

Casado, L. C. (2026). The Dilemma between Data Protection and Data Altruism within the Context of Rare Diseases in the European Health Data Space. European Journal of Health Law. https://doi.org/10.1163/15718093-bja10169

Source records

crossref · retrieved 2026-09-26T00:32:34.480Z