A qualitative study of the discrepancy between patient expectations and assessment practices in 5q-adult spinal muscular atrophy in France.

Montagu G, Boyer FC, Gargiulo M, Pouplin S, Barrière A, Berling E, Bonnyaud C, Cintas P, Hogrel JY, Le Goff L, Marchadier B, N'Dah Sekou G, Orlikowski D, Prigent H, Pruvot A, Ropars J, Salort-Campana E, Stojkovic T, Nicolas G, Attarian S, Laforêt P

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DOI: 10.1177/22143602251413326
Published: 2026 Apr 24
Container: Journal of neuromuscular diseases
Publisher: Not recorded
Open access: yes

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Cite this work

BibTeX

@article{allodium:10.1177/22143602251413326,
  title = {A qualitative study of the discrepancy between patient expectations and assessment practices in 5q-adult spinal muscular atrophy in France.},
  author = {Montagu G and Boyer FC and Gargiulo M and Pouplin S and Barrière A and Berling E and Bonnyaud C and Cintas P and Hogrel JY and Le Goff L and Marchadier B and N'Dah Sekou G and Orlikowski D and Prigent H and Pruvot A and Ropars J and Salort-Campana E and Stojkovic T and Nicolas G and Attarian S and Laforêt P},
  year = {2026},
  journal = {Journal of neuromuscular diseases},
  doi = {10.1177/22143602251413326},
  url = {https://doi.org/10.1177/22143602251413326}
}

RIS

TY  - JOUR
TI  - A qualitative study of the discrepancy between patient expectations and assessment practices in 5q-adult spinal muscular atrophy in France.
AU  - Montagu G
AU  - Boyer FC
AU  - Gargiulo M
AU  - Pouplin S
AU  - Barrière A
AU  - Berling E
AU  - Bonnyaud C
AU  - Cintas P
AU  - Hogrel JY
AU  - Le Goff L
AU  - Marchadier B
AU  - N'Dah Sekou G
AU  - Orlikowski D
AU  - Prigent H
AU  - Pruvot A
AU  - Ropars J
AU  - Salort-Campana E
AU  - Stojkovic T
AU  - Nicolas G
AU  - Attarian S
AU  - Laforêt P
PY  - 2026
JO  - Journal of neuromuscular diseases
DO  - 10.1177/22143602251413326
UR  - https://doi.org/10.1177/22143602251413326
ER  -

APA

G, M., FC, B., M, G., S, P., A, B., E, B., C, B., P, C., JY, H., L, L. G., B, M., G, N. S., D, O., H, P., A, P., J, R., E, S., T, S., G, N., S, A., & P, L. (2026). A qualitative study of the discrepancy between patient expectations and assessment practices in 5q-adult spinal muscular atrophy in France.. Journal of neuromuscular diseases. https://doi.org/10.1177/22143602251413326

Source records

pubmed · retrieved 2026-09-25T21:20:06.508Z