Access to lymphangioleiomyomatosis care across Europe: an ERN-LUNG survey of clinical practice, and the case for a European registry and trial network.

O'Malley D, Humbert-Dorfmüller E, Barberà JA, van Batenburg A, Bendstrup E, Cottin V, Elia D, Froidure A, Grutters J, Harari S, Hernandez-Gonzalez F, Kokosi M, Lund TK, Manali ED, Meszaros G, van Pottelberge G, Radzikowska E, Sellares J, Svenningsson A, Veltkamp M, Wagner T, Hebestreit H, McCarthy C

Open source

DOI: 10.1183/23120541.01010-2025
Published: 2026 Mar
Container: ERJ open research
Publisher: Not recorded
Open access: yes

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limited evidence Score 45/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.

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Cite this work

BibTeX

@article{allodium:10.1183/23120541.01010-2025,
  title = {Access to lymphangioleiomyomatosis care across Europe: an ERN-LUNG survey of clinical practice, and the case for a European registry and trial network.},
  author = {O'Malley D and Humbert-Dorfmüller E and Barberà JA and van Batenburg A and Bendstrup E and Cottin V and Elia D and Froidure A and Grutters J and Harari S and Hernandez-Gonzalez F and Kokosi M and Lund TK and Manali ED and Meszaros G and van Pottelberge G and Radzikowska E and Sellares J and Svenningsson A and Veltkamp M and Wagner T and Hebestreit H and McCarthy C},
  year = {2026},
  journal = {ERJ open research},
  doi = {10.1183/23120541.01010-2025},
  url = {https://doi.org/10.1183/23120541.01010-2025}
}

RIS

TY  - JOUR
TI  - Access to lymphangioleiomyomatosis care across Europe: an ERN-LUNG survey of clinical practice, and the case for a European registry and trial network.
AU  - O'Malley D
AU  - Humbert-Dorfmüller E
AU  - Barberà JA
AU  - van Batenburg A
AU  - Bendstrup E
AU  - Cottin V
AU  - Elia D
AU  - Froidure A
AU  - Grutters J
AU  - Harari S
AU  - Hernandez-Gonzalez F
AU  - Kokosi M
AU  - Lund TK
AU  - Manali ED
AU  - Meszaros G
AU  - van Pottelberge G
AU  - Radzikowska E
AU  - Sellares J
AU  - Svenningsson A
AU  - Veltkamp M
AU  - Wagner T
AU  - Hebestreit H
AU  - McCarthy C
PY  - 2026
JO  - ERJ open research
DO  - 10.1183/23120541.01010-2025
UR  - https://doi.org/10.1183/23120541.01010-2025
ER  -

APA

D, O., E, H., JA, B., A, V. B., E, B., V, C., D, E., A, F., J, G., S, H., F, H., M, K., TK, L., ED, M., G, M., G, V. P., E, R., J, S., A, S., M, V., T, W., H, H., & C, M. (2026). Access to lymphangioleiomyomatosis care across Europe: an ERN-LUNG survey of clinical practice, and the case for a European registry and trial network.. ERJ open research. https://doi.org/10.1183/23120541.01010-2025

Source records

pubmed · retrieved 2026-09-27T10:14:41.253Z