Decentralized rare disease studies in Germany: first results and hurdles of secondary use of patient data.
- DOI
- 10.1186/s12911-026-03688-7
- Published
- 2026-08-12
- Container
- BMC Med Inform Decis Mak
- Publisher
- Not recorded
- Open access
- yes
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Cite this work
BibTeX
@article{allodium:10.1186/s12911-026-03688-7,
title = {Decentralized rare disease studies in Germany: first results and hurdles of secondary use of patient data.},
author = {Zoch M and Gierschner C and Weidner J and Sedlmayr M and Müller G and Choukair D and Hoffmann GF and Toepfner N and Berner R and Prasser F and Schepers J and Hebestreit H.},
year = {2026},
journal = {BMC Med Inform Decis Mak},
doi = {10.1186/s12911-026-03688-7},
url = {https://doi.org/10.1186/s12911-026-03688-7}
}RIS
TY - JOUR TI - Decentralized rare disease studies in Germany: first results and hurdles of secondary use of patient data. AU - Zoch M AU - Gierschner C AU - Weidner J AU - Sedlmayr M AU - Müller G AU - Choukair D AU - Hoffmann GF AU - Toepfner N AU - Berner R AU - Prasser F AU - Schepers J AU - Hebestreit H. PY - 2026 JO - BMC Med Inform Decis Mak DO - 10.1186/s12911-026-03688-7 UR - https://doi.org/10.1186/s12911-026-03688-7 ER -
APA
M, Z., C, G., J, W., M, S., G, M., D, C., GF, H., N, T., R, B., F, P., J, S., & H., H. (2026). Decentralized rare disease studies in Germany: first results and hurdles of secondary use of patient data.. BMC Med Inform Decis Mak. https://doi.org/10.1186/s12911-026-03688-7
Source records
- europe-pmc · retrieved 2026-09-25T23:05:24.593Z
- doaj · retrieved 2026-09-25T23:05:24.599Z