"Getting ready for the adult world": how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being.
- DOI
- 10.1186/s13023-019-1052-2
- Published
- 2019 Apr 2
- Container
- Orphanet journal of rare diseases
- Publisher
- Not recorded
- Open access
- yes
Credibility signals
limited evidence Score 45/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.
Show all credibility signals
- cautionDOI registered: No matching Crossref record was present in this response.
- cautionDOI resolves: No matching Crossref record was present in this response.
- not scoredDirectory of Open Access Journals: No matching DOAJ record was present in this response. No allow-list match; this is not evidence of low credibility.
- not scoredMEDLINE indexed: Not checked or no result supplied; no credibility inference made.
- not scoredOpenAlex core source: Not checked or no result supplied; no credibility inference made.
- not scoredKnown publisher allow-list: Not checked or no result supplied; no credibility inference made.
- not scoredROR affiliation: Not checked or no result supplied; no credibility inference made.
- not scoredRetraction Watch retraction: No retraction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch expression of concern: No expression of concern notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch correction: No correction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch reinstatement: No reinstatement notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- supportingOpen access status: Normalized open-access status: open.
- not scoredPublication license: Not checked or no result supplied; no credibility inference made.
- not scoredPublication version: A publication version was supplied but is not scored.
- cautionMetadata completeness: 5 of 6 scored descriptive metadata groups are present; missing fields increase uncertainty.
Cite this work
BibTeX
@article{allodium:10.1186/s13023-019-1052-2,
title = {"Getting ready for the adult world": how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being.},
author = {Wan HWY and Carey KA and D'Silva A and Kasparian NA and Farrar MA},
year = {2019},
journal = {Orphanet journal of rare diseases},
doi = {10.1186/s13023-019-1052-2},
url = {https://doi.org/10.1186/s13023-019-1052-2}
}RIS
TY - JOUR TI - "Getting ready for the adult world": how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being. AU - Wan HWY AU - Carey KA AU - D'Silva A AU - Kasparian NA AU - Farrar MA PY - 2019 JO - Orphanet journal of rare diseases DO - 10.1186/s13023-019-1052-2 UR - https://doi.org/10.1186/s13023-019-1052-2 ER -
APA
HWY, W., KA, C., A, D., NA, K., & MA, F. (2019). "Getting ready for the adult world": how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being.. Orphanet journal of rare diseases. https://doi.org/10.1186/s13023-019-1052-2
Source records
- pubmed · retrieved 2026-09-25T12:55:29.469Z