Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals

Holly Walton, Pei Li Ng, Amy Simpson, Lara Bloom, Lyn S. Chitty, Naomi J. Fulop, Amy Hunter, Jennifer Jones, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Kerry Leeson-Beevers, Sharon Parkes, Angus I. G. Ramsay, Alastair Sutcliffe, Christine Taylor, Stephen Morris

Open source

DOI: 10.1186/s13023-023-02934-9
Published: 2023-11-23
Container: Orphanet Journal of Rare Diseases
Publisher: Springer Science and Business Media LLC
Open access: unknown

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Cite this work

BibTeX

@article{allodium:10.1186/s13023-023-02934-9,
  title = {Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals},
  author = {Holly Walton and Pei Li Ng and Amy Simpson and Lara Bloom and Lyn S. Chitty and Naomi J. Fulop and Amy Hunter and Jennifer Jones and Joe Kai and Larissa Kerecuk and Maria Kokocinska and Kerry Leeson-Beevers and Sharon Parkes and Angus I. G. Ramsay and Alastair Sutcliffe and Christine Taylor and Stephen Morris},
  year = {2023},
  journal = {Orphanet Journal of Rare Diseases},
  doi = {10.1186/s13023-023-02934-9},
  url = {https://doi.org/10.1186/s13023-023-02934-9}
}

RIS

TY  - JOUR
TI  - Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals
AU  - Holly Walton
AU  - Pei Li Ng
AU  - Amy Simpson
AU  - Lara Bloom
AU  - Lyn S. Chitty
AU  - Naomi J. Fulop
AU  - Amy Hunter
AU  - Jennifer Jones
AU  - Joe Kai
AU  - Larissa Kerecuk
AU  - Maria Kokocinska
AU  - Kerry Leeson-Beevers
AU  - Sharon Parkes
AU  - Angus I. G. Ramsay
AU  - Alastair Sutcliffe
AU  - Christine Taylor
AU  - Stephen Morris
PY  - 2023
JO  - Orphanet Journal of Rare Diseases
DO  - 10.1186/s13023-023-02934-9
UR  - https://doi.org/10.1186/s13023-023-02934-9
ER  -

APA

Walton, H., Ng, P. L., Simpson, A., Bloom, L., Chitty, L. S., Fulop, N. J., Hunter, A., Jones, J., Kai, J., Kerecuk, L., Kokocinska, M., Leeson-Beevers, K., Parkes, S., Ramsay, A. I. G., Sutcliffe, A., Taylor, C., & Morris, S. (2023). Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals. Orphanet Journal of Rare Diseases. https://doi.org/10.1186/s13023-023-02934-9

Source records

crossref · retrieved 2026-09-26T08:56:52.807Z