A rare partnership: patient community and industry collaboration to shape the impact of real-world evidence on the rare disease ecosystem.
- DOI
- 10.1186/s13023-024-03262-2
- Published
- 2024 Jul 10
- Container
- Orphanet journal of rare diseases
- Publisher
- Not recorded
- Open access
- yes
Credibility signals
uncertain Score 53/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.
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Cite this work
BibTeX
@article{allodium:10.1186/s13023-024-03262-2,
title = {A rare partnership: patient community and industry collaboration to shape the impact of real-world evidence on the rare disease ecosystem.},
author = {Klein TL and Bender J and Bolton S and Collin-Histed T and Daher A and De Baere L and Dong D and Hopkin J and Johnson J and Lai T and Pavlou M and Schaller T and Žnidar I},
year = {2024},
journal = {Orphanet journal of rare diseases},
doi = {10.1186/s13023-024-03262-2},
url = {https://doi.org/10.1186/s13023-024-03262-2}
}RIS
TY - JOUR TI - A rare partnership: patient community and industry collaboration to shape the impact of real-world evidence on the rare disease ecosystem. AU - Klein TL AU - Bender J AU - Bolton S AU - Collin-Histed T AU - Daher A AU - De Baere L AU - Dong D AU - Hopkin J AU - Johnson J AU - Lai T AU - Pavlou M AU - Schaller T AU - Žnidar I PY - 2024 JO - Orphanet journal of rare diseases DO - 10.1186/s13023-024-03262-2 UR - https://doi.org/10.1186/s13023-024-03262-2 ER -
APA
TL, K., J, B., S, B., T, C., A, D., L, D. B., D, D., J, H., J, J., T, L., M, P., T, S., & I, Ž. (2024). A rare partnership: patient community and industry collaboration to shape the impact of real-world evidence on the rare disease ecosystem.. Orphanet journal of rare diseases. https://doi.org/10.1186/s13023-024-03262-2
Source records
- pubmed · retrieved 2026-09-27T01:30:40.437Z
- europe-pmc · retrieved 2026-09-27T01:30:40.454Z
- doaj · retrieved 2026-09-27T01:30:40.449Z