Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study.
- DOI
- 10.1186/s13023-025-03796-z
- Published
- 2025 Jun 6
- Container
- Orphanet journal of rare diseases
- Publisher
- Not recorded
- Open access
- yes
Credibility signals
uncertain Score 53/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.
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Cite this work
BibTeX
@article{allodium:10.1186/s13023-025-03796-z,
title = {Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study.},
author = {Johnson B and Gibson G and Baskerville D and Castellano G and de Courcy J and Iqbal H and Piercy J and Williams A and Pinedo-Villanueva R and Rylands A},
year = {2025},
journal = {Orphanet journal of rare diseases},
doi = {10.1186/s13023-025-03796-z},
url = {https://doi.org/10.1186/s13023-025-03796-z}
}RIS
TY - JOUR TI - Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study. AU - Johnson B AU - Gibson G AU - Baskerville D AU - Castellano G AU - de Courcy J AU - Iqbal H AU - Piercy J AU - Williams A AU - Pinedo-Villanueva R AU - Rylands A PY - 2025 JO - Orphanet journal of rare diseases DO - 10.1186/s13023-025-03796-z UR - https://doi.org/10.1186/s13023-025-03796-z ER -
APA
B, J., G, G., D, B., G, C., J, D. C., H, I., J, P., A, W., R, P., & A, R. (2025). Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study.. Orphanet journal of rare diseases. https://doi.org/10.1186/s13023-025-03796-z
Source records
- pubmed · retrieved 2026-09-27T16:00:45.055Z
- europe-pmc · retrieved 2026-09-27T16:00:45.070Z
- doaj · retrieved 2026-09-27T16:00:45.052Z