Identity development and adaptation in adolescents with genetic conditions: a qualitatively oriented mixed-methods study to develop strategies for optimizing clinical genetics services

Tasha Wainstein, Cyrus Boelman, Connie Ens, William T. Gibson, Kevin Gregory-Evans, Olubayo U. Kolawole, Sheila K. Marshall, Kathryn Selby, Unknown, Bartha Knoppers, Larry D. Lynd, Alivia Dey, Shelin Adam, Nick Bansback, Patricia Birch, Lorne Clarke, Nick Dragojlovic, Jan Friedman, Debby Lambert, Daryl Pullman, Alice Virani, Wyeth Wasserman, Ma’n Zawati, Jehannine Austin, Alison M. Elliott

Open source

DOI: 10.1186/s13023-025-03968-x
Published: 2025-08-21
Container: Orphanet Journal of Rare Diseases
Publisher: Springer Science and Business Media LLC
Open access: unknown

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Cite this work

BibTeX

@article{allodium:10.1186/s13023-025-03968-x,
  title = {Identity development and adaptation in adolescents with genetic conditions: a qualitatively oriented mixed-methods study to develop strategies for optimizing clinical genetics services},
  author = {Tasha Wainstein and Cyrus Boelman and Connie Ens and William T. Gibson and Kevin Gregory-Evans and Olubayo U. Kolawole and Sheila K. Marshall and Kathryn Selby and Unknown and Bartha Knoppers and Larry D. Lynd and Alivia Dey and Shelin Adam and Nick Bansback and Patricia Birch and Lorne Clarke and Nick Dragojlovic and Jan Friedman and Debby Lambert and Daryl Pullman and Alice Virani and Wyeth Wasserman and Ma’n Zawati and Jehannine Austin and Alison M. Elliott},
  year = {2025},
  journal = {Orphanet Journal of Rare Diseases},
  doi = {10.1186/s13023-025-03968-x},
  url = {https://doi.org/10.1186/s13023-025-03968-x}
}

RIS

TY  - JOUR
TI  - Identity development and adaptation in adolescents with genetic conditions: a qualitatively oriented mixed-methods study to develop strategies for optimizing clinical genetics services
AU  - Tasha Wainstein
AU  - Cyrus Boelman
AU  - Connie Ens
AU  - William T. Gibson
AU  - Kevin Gregory-Evans
AU  - Olubayo U. Kolawole
AU  - Sheila K. Marshall
AU  - Kathryn Selby
AU  - Unknown
AU  - Bartha Knoppers
AU  - Larry D. Lynd
AU  - Alivia Dey
AU  - Shelin Adam
AU  - Nick Bansback
AU  - Patricia Birch
AU  - Lorne Clarke
AU  - Nick Dragojlovic
AU  - Jan Friedman
AU  - Debby Lambert
AU  - Daryl Pullman
AU  - Alice Virani
AU  - Wyeth Wasserman
AU  - Ma’n Zawati
AU  - Jehannine Austin
AU  - Alison M. Elliott
PY  - 2025
JO  - Orphanet Journal of Rare Diseases
DO  - 10.1186/s13023-025-03968-x
UR  - https://doi.org/10.1186/s13023-025-03968-x
ER  -

APA

Wainstein, T., Boelman, C., Ens, C., Gibson, W. T., Gregory-Evans, K., Kolawole, O. U., Marshall, S. K., Selby, K., Unknown, Knoppers, B., Lynd, L. D., Dey, A., Adam, S., Bansback, N., Birch, P., Clarke, L., Dragojlovic, N., Friedman, J., Lambert, D., Pullman, D., Virani, A., Wasserman, W., Zawati, M., Austin, J., & Elliott, A. M. (2025). Identity development and adaptation in adolescents with genetic conditions: a qualitatively oriented mixed-methods study to develop strategies for optimizing clinical genetics services. Orphanet Journal of Rare Diseases. https://doi.org/10.1186/s13023-025-03968-x

Source records

crossref · retrieved 2026-09-26T08:18:30.705Z