Living with adrenoleukodystrophy: adult patient and caregiver perspectives.

Fine AS, Sullivan-Fortin KO, Miettunen K, Emerson F, Sadjadi R, Fatemi A, Eichler F

DOI: 10.1186/s13023-025-04130-3
Published: 2026 Jan 8
Container: Orphanet journal of rare diseases
Publisher: Not recorded
Open access: yes

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limited evidence Score 45/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.

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Cite this work

BibTeX

@article{allodium:10.1186/s13023-025-04130-3,
  title = {Living with adrenoleukodystrophy: adult patient and caregiver perspectives.},
  author = {Fine AS and Sullivan-Fortin KO and Miettunen K and Emerson F and Sadjadi R and Fatemi A and Eichler F},
  year = {2026},
  journal = {Orphanet journal of rare diseases},
  doi = {10.1186/s13023-025-04130-3},
  url = {https://doi.org/10.1186/s13023-025-04130-3}
}

RIS

TY  - JOUR
TI  - Living with adrenoleukodystrophy: adult patient and caregiver perspectives.
AU  - Fine AS
AU  - Sullivan-Fortin KO
AU  - Miettunen K
AU  - Emerson F
AU  - Sadjadi R
AU  - Fatemi A
AU  - Eichler F
PY  - 2026
JO  - Orphanet journal of rare diseases
DO  - 10.1186/s13023-025-04130-3
UR  - https://doi.org/10.1186/s13023-025-04130-3
ER  -

APA

AS, F., KO, S., K, M., F, E., R, S., A, F., & F, E. (2026). Living with adrenoleukodystrophy: adult patient and caregiver perspectives.. Orphanet journal of rare diseases. https://doi.org/10.1186/s13023-025-04130-3

Source records

pubmed · retrieved 2026-09-25T22:08:27.457Z