The lived experience and supportive care needs of Australian parents caring for children with Epidermolysis Bullosa: a qualitative descriptive analysis
- DOI
- 10.1186/s13023-025-04159-4
- Published
- 2025-11-29
- Container
- Orphanet Journal of Rare Diseases
- Publisher
- Springer Science and Business Media LLC
- Open access
- unknown
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Cite this work
BibTeX
@article{allodium:10.1186/s13023-025-04159-4,
title = {The lived experience and supportive care needs of Australian parents caring for children with Epidermolysis Bullosa: a qualitative descriptive analysis},
author = {Hayley Ruf and Colin J. Ireland and Lemuel J. Pelentsov and Zlatko Kopecki},
year = {2025},
journal = {Orphanet Journal of Rare Diseases},
doi = {10.1186/s13023-025-04159-4},
url = {https://doi.org/10.1186/s13023-025-04159-4}
}RIS
TY - JOUR TI - The lived experience and supportive care needs of Australian parents caring for children with Epidermolysis Bullosa: a qualitative descriptive analysis AU - Hayley Ruf AU - Colin J. Ireland AU - Lemuel J. Pelentsov AU - Zlatko Kopecki PY - 2025 JO - Orphanet Journal of Rare Diseases DO - 10.1186/s13023-025-04159-4 UR - https://doi.org/10.1186/s13023-025-04159-4 ER -
APA
Ruf, H., Ireland, C. J., Pelentsov, L. J., & Kopecki, Z. (2025). The lived experience and supportive care needs of Australian parents caring for children with Epidermolysis Bullosa: a qualitative descriptive analysis. Orphanet Journal of Rare Diseases. https://doi.org/10.1186/s13023-025-04159-4
Source records
- crossref · retrieved 2026-09-26T19:40:57.575Z