Health-related quality of life in adults with epidermolysis bullosa: a cross-sectional study in seven European countries using EQ-5D-5L.

Linertová R, Péntek M, Rodríguez-Díaz B, Bodemer C, Hübl V, El Hachem M, Salamon G, Alonso-Ferreira V, Stefanov G, Jain R, Ramallo-Fariña Y, García-Pérez L, BUR-EB Study Group

Open source

DOI: 10.1186/s13023-026-04299-1
Published: 2026 Mar 19
Container: Orphanet journal of rare diseases
Publisher: Not recorded
Open access: yes

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Cite this work

BibTeX

@article{allodium:10.1186/s13023-026-04299-1,
  title = {Health-related quality of life in adults with epidermolysis bullosa: a cross-sectional study in seven European countries using EQ-5D-5L.},
  author = {Linertová R and Péntek M and Rodríguez-Díaz B and Bodemer C and Hübl V and El Hachem M and Salamon G and Alonso-Ferreira V and Stefanov G and Jain R and Ramallo-Fariña Y and García-Pérez L and BUR-EB Study Group},
  year = {2026},
  journal = {Orphanet journal of rare diseases},
  doi = {10.1186/s13023-026-04299-1},
  url = {https://doi.org/10.1186/s13023-026-04299-1}
}

RIS

TY  - JOUR
TI  - Health-related quality of life in adults with epidermolysis bullosa: a cross-sectional study in seven European countries using EQ-5D-5L.
AU  - Linertová R
AU  - Péntek M
AU  - Rodríguez-Díaz B
AU  - Bodemer C
AU  - Hübl V
AU  - El Hachem M
AU  - Salamon G
AU  - Alonso-Ferreira V
AU  - Stefanov G
AU  - Jain R
AU  - Ramallo-Fariña Y
AU  - García-Pérez L
AU  - BUR-EB Study Group
PY  - 2026
JO  - Orphanet journal of rare diseases
DO  - 10.1186/s13023-026-04299-1
UR  - https://doi.org/10.1186/s13023-026-04299-1
ER  -

APA

R, L., M, P., B, R., C, B., V, H., M, E. H., G, S., V, A., G, S., R, J., Y, R., L, G., & Group, B. S. (2026). Health-related quality of life in adults with epidermolysis bullosa: a cross-sectional study in seven European countries using EQ-5D-5L.. Orphanet journal of rare diseases. https://doi.org/10.1186/s13023-026-04299-1

Source records

pubmed · retrieved 2026-09-27T07:05:53.032Z