Fostering continuous quality improvement in a European rare disease network: Where are we now?
- DOI
- 10.1186/s13023-026-04324-3
- Published
- 2026 Apr 29
- Container
- Orphanet journal of rare diseases
- Publisher
- Not recorded
- Open access
- yes
Credibility signals
limited evidence Score 45/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.
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Cite this work
BibTeX
@article{allodium:10.1186/s13023-026-04324-3,
title = {Fostering continuous quality improvement in a European rare disease network: Where are we now?},
author = {van der Kamp LM and Galdrán SR and Irvine WFE and Rossi D and van Steekelenburg R and ERNICA Representatives and Wijnen RMH and Ista E and Spivack OKC},
year = {2026},
journal = {Orphanet journal of rare diseases},
doi = {10.1186/s13023-026-04324-3},
url = {https://doi.org/10.1186/s13023-026-04324-3}
}RIS
TY - JOUR TI - Fostering continuous quality improvement in a European rare disease network: Where are we now? AU - van der Kamp LM AU - Galdrán SR AU - Irvine WFE AU - Rossi D AU - van Steekelenburg R AU - ERNICA Representatives AU - Wijnen RMH AU - Ista E AU - Spivack OKC PY - 2026 JO - Orphanet journal of rare diseases DO - 10.1186/s13023-026-04324-3 UR - https://doi.org/10.1186/s13023-026-04324-3 ER -
APA
LM, V. D. K., SR, G., WFE, I., D, R., R, V. S., Representatives, E., RMH, W., E, I., & OKC, S. (2026). Fostering continuous quality improvement in a European rare disease network: Where are we now?. Orphanet journal of rare diseases. https://doi.org/10.1186/s13023-026-04324-3
Source records
- pubmed · retrieved 2026-09-26T02:29:01.080Z