Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES).

Jeffs E, Pillay EI, Ledwaba-Chapman L, Bisquera A, Robertson SJ, McGrath JA, Wang Y, Martinez AE, Mellerio JE

Open source

DOI
10.1186/s13023-026-04330-5
Published
2026 May 6
Container
Orphanet journal of rare diseases
Publisher
Not recorded
Open access
yes

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BibTeX

@article{allodium:10.1186/s13023-026-04330-5,
  title = {Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES).},
  author = {Jeffs E and Pillay EI and Ledwaba-Chapman L and Bisquera A and Robertson SJ and McGrath JA and Wang Y and Martinez AE and Mellerio JE},
  year = {2026},
  journal = {Orphanet journal of rare diseases},
  doi = {10.1186/s13023-026-04330-5},
  url = {https://doi.org/10.1186/s13023-026-04330-5}
}

RIS

TY  - JOUR
TI  - Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES).
AU  - Jeffs E
AU  - Pillay EI
AU  - Ledwaba-Chapman L
AU  - Bisquera A
AU  - Robertson SJ
AU  - McGrath JA
AU  - Wang Y
AU  - Martinez AE
AU  - Mellerio JE
PY  - 2026
JO  - Orphanet journal of rare diseases
DO  - 10.1186/s13023-026-04330-5
UR  - https://doi.org/10.1186/s13023-026-04330-5
ER  - 

APA

E, J., EI, P., L, L., A, B., SJ, R., JA, M., Y, W., AE, M., & JE, M. (2026). Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES).. Orphanet journal of rare diseases. https://doi.org/10.1186/s13023-026-04330-5

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