Patient-reported experiences of people living with a rare disease with secondary and tertiary care: a scoping review
- DOI
- 10.1186/s13023-026-04368-5
- Published
- 2026-11-04
- Container
- Orphanet Journal of Rare Diseases
- Publisher
- Springer Science and Business Media LLC
- Open access
- unknown
Credibility signals
uncertain Score 64/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.
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Cite this work
BibTeX
@article{allodium:10.1186/s13023-026-04368-5,
title = {Patient-reported experiences of people living with a rare disease with secondary and tertiary care: a scoping review},
author = {Rita Francisco and Michel Wensing and Jennifer Jones and Jessie Dubief},
year = {2026},
journal = {Orphanet Journal of Rare Diseases},
doi = {10.1186/s13023-026-04368-5},
url = {https://doi.org/10.1186/s13023-026-04368-5}
}RIS
TY - JOUR TI - Patient-reported experiences of people living with a rare disease with secondary and tertiary care: a scoping review AU - Rita Francisco AU - Michel Wensing AU - Jennifer Jones AU - Jessie Dubief PY - 2026 JO - Orphanet Journal of Rare Diseases DO - 10.1186/s13023-026-04368-5 UR - https://doi.org/10.1186/s13023-026-04368-5 ER -
APA
Francisco, R., Wensing, M., Jones, J., & Dubief, J. (2026). Patient-reported experiences of people living with a rare disease with secondary and tertiary care: a scoping review. Orphanet Journal of Rare Diseases. https://doi.org/10.1186/s13023-026-04368-5
Source records
- crossref · retrieved 2026-11-08T16:52:30.298Z