Management of patients with rare diseases in the Middle East: challenges & opportunities – insights from the Rare Advocacy Council

Agnès Farrugia, Ahmed Bahey, Ahmad Tarawah, Arwa Al Yamani, Carla Abou Selwan, Dania Mohty, Denis Wolfs, Dorica Dan, Hafiz Mosa Ali Malhan, Johan De Graaf, Stefan Živković, Yasser Wali, Youmna Ouraybi, Zakareya Al Kadhem, Nafisa Tawfiq, Lee Davelaar, Noha Mohamed Mahmoud Abdelbaky

Open source

DOI
10.1186/s13023-026-04469-1
Published
2026-07-31
Container
Orphanet Journal of Rare Diseases
Publisher
Springer Science and Business Media LLC
Open access
unknown

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BibTeX

@article{allodium:10.1186/s13023-026-04469-1,
  title = {Management of patients with rare diseases in the Middle East: challenges \& opportunities – insights from the Rare Advocacy Council},
  author = {Agnès Farrugia and Ahmed Bahey and Ahmad Tarawah and Arwa Al Yamani and Carla Abou Selwan and Dania Mohty and Denis Wolfs and Dorica Dan and Hafiz Mosa Ali Malhan and Johan De Graaf and Stefan Živković and Yasser Wali and Youmna Ouraybi and Zakareya Al Kadhem and Nafisa Tawfiq and Lee Davelaar and Noha Mohamed Mahmoud Abdelbaky},
  year = {2026},
  journal = {Orphanet Journal of Rare Diseases},
  doi = {10.1186/s13023-026-04469-1},
  url = {https://doi.org/10.1186/s13023-026-04469-1}
}

RIS

TY  - JOUR
TI  - Management of patients with rare diseases in the Middle East: challenges & opportunities – insights from the Rare Advocacy Council
AU  - Agnès Farrugia
AU  - Ahmed Bahey
AU  - Ahmad Tarawah
AU  - Arwa Al Yamani
AU  - Carla Abou Selwan
AU  - Dania Mohty
AU  - Denis Wolfs
AU  - Dorica Dan
AU  - Hafiz Mosa Ali Malhan
AU  - Johan De Graaf
AU  - Stefan Živković
AU  - Yasser Wali
AU  - Youmna Ouraybi
AU  - Zakareya Al Kadhem
AU  - Nafisa Tawfiq
AU  - Lee Davelaar
AU  - Noha Mohamed Mahmoud Abdelbaky
PY  - 2026
JO  - Orphanet Journal of Rare Diseases
DO  - 10.1186/s13023-026-04469-1
UR  - https://doi.org/10.1186/s13023-026-04469-1
ER  - 

APA

Farrugia, A., Bahey, A., Tarawah, A., Yamani, A. A., Selwan, C. A., Mohty, D., Wolfs, D., Dan, D., Malhan, H. M. A., Graaf, J. D., Živković, S., Wali, Y., Ouraybi, Y., Kadhem, Z. A., Tawfiq, N., Davelaar, L., & Abdelbaky, N. M. M. (2026). Management of patients with rare diseases in the Middle East: challenges & opportunities – insights from the Rare Advocacy Council. Orphanet Journal of Rare Diseases. https://doi.org/10.1186/s13023-026-04469-1

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