Quality of life and burden of caregivers of patients with alpha-mannosidosis: an international survey
- DOI
- 10.1186/s13023-026-04496-y
- Published
- 2026-07-22
- Container
- Orphanet Journal of Rare Diseases
- Publisher
- Springer Science and Business Media LLC
- Open access
- unknown
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Cite this work
BibTeX
@article{allodium:10.1186/s13023-026-04496-y,
title = {Quality of life and burden of caregivers of patients with alpha-mannosidosis: an international survey},
author = {Julia B. Hennermann and Nathalie Guffon and Sophie Thomas and Karolina M. Stepien and Christina Lampe and Nicole M. Muschol and Maria Juliana Ballesta-Martínez and Jordi Cruz and Mónica López-Rodríguez and Anneliese Barth and Allan M. Lund and Vasilica Plaiasu and Chiara Donati and Heather M. Morgan and Andrea Ballabeni and Martin Magner},
year = {2026},
journal = {Orphanet Journal of Rare Diseases},
doi = {10.1186/s13023-026-04496-y},
url = {https://doi.org/10.1186/s13023-026-04496-y}
}RIS
TY - JOUR TI - Quality of life and burden of caregivers of patients with alpha-mannosidosis: an international survey AU - Julia B. Hennermann AU - Nathalie Guffon AU - Sophie Thomas AU - Karolina M. Stepien AU - Christina Lampe AU - Nicole M. Muschol AU - Maria Juliana Ballesta-Martínez AU - Jordi Cruz AU - Mónica López-Rodríguez AU - Anneliese Barth AU - Allan M. Lund AU - Vasilica Plaiasu AU - Chiara Donati AU - Heather M. Morgan AU - Andrea Ballabeni AU - Martin Magner PY - 2026 JO - Orphanet Journal of Rare Diseases DO - 10.1186/s13023-026-04496-y UR - https://doi.org/10.1186/s13023-026-04496-y ER -
APA
Hennermann, J. B., Guffon, N., Thomas, S., Stepien, K. M., Lampe, C., Muschol, N. M., Ballesta-Martínez, M. J., Cruz, J., López-Rodríguez, M., Barth, A., Lund, A. M., Plaiasu, V., Donati, C., Morgan, H. M., Ballabeni, A., & Magner, M. (2026). Quality of life and burden of caregivers of patients with alpha-mannosidosis: an international survey. Orphanet Journal of Rare Diseases. https://doi.org/10.1186/s13023-026-04496-y
Source records
- crossref · retrieved 2026-11-06T06:45:48.937Z