A study on the quality of life and burden of informal caregivers of children with metachromatic leukodystrophy in Poland

Dariusz Walkowiak, Tomasz Grybek, Karolina Śledzińska, Anna Lemska, Ninela Irga-Jaworska, Jolanta Wierzba, Maria Mazurkiewicz-Bełdzińska, Jan Domaradzki

Open source

DOI
10.1186/s13023-026-04545-6
Published
2026-08-11
Container
Orphanet Journal of Rare Diseases
Publisher
Springer Science and Business Media LLC
Open access
unknown

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BibTeX

@article{allodium:10.1186/s13023-026-04545-6,
  title = {A study on the quality of life and burden of informal caregivers of children with metachromatic leukodystrophy in Poland},
  author = {Dariusz Walkowiak and Tomasz Grybek and Karolina Śledzińska and Anna Lemska and Ninela Irga-Jaworska and Jolanta Wierzba and Maria Mazurkiewicz-Bełdzińska and Jan Domaradzki},
  year = {2026},
  journal = {Orphanet Journal of Rare Diseases},
  doi = {10.1186/s13023-026-04545-6},
  url = {https://doi.org/10.1186/s13023-026-04545-6}
}

RIS

TY  - JOUR
TI  - A study on the quality of life and burden of informal caregivers of children with metachromatic leukodystrophy in Poland
AU  - Dariusz Walkowiak
AU  - Tomasz Grybek
AU  - Karolina Śledzińska
AU  - Anna Lemska
AU  - Ninela Irga-Jaworska
AU  - Jolanta Wierzba
AU  - Maria Mazurkiewicz-Bełdzińska
AU  - Jan Domaradzki
PY  - 2026
JO  - Orphanet Journal of Rare Diseases
DO  - 10.1186/s13023-026-04545-6
UR  - https://doi.org/10.1186/s13023-026-04545-6
ER  - 

APA

Walkowiak, D., Grybek, T., Śledzińska, K., Lemska, A., Irga-Jaworska, N., Wierzba, J., Mazurkiewicz-Bełdzińska, M., & Domaradzki, J. (2026). A study on the quality of life and burden of informal caregivers of children with metachromatic leukodystrophy in Poland. Orphanet Journal of Rare Diseases. https://doi.org/10.1186/s13023-026-04545-6

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