Patient pathways for rare liver diseases: a European template developed by ERN RARE-LIVER.

Raevens S, Duijzer R, Fodor A, Johnson MB, Issa N, Pénisson S, Patel S, Bertolini A, Teemer CAJ, Ramier C, Elkrief L, Senzolo M, Hernandez-Gea V, Lohse AW, Procopet B, Drenth JPH, Plessier A

Open source

DOI: 10.1186/s13023-026-04556-3
Published: 2026 Sep 5
Container: Orphanet journal of rare diseases
Publisher: Not recorded
Open access: yes

Credibility signals

limited evidence Score 45/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.

Show all credibility signals

cautionDOI registered: No matching Crossref record was present in this response. Source: Crossref; license: CC0 metadata
cautionDOI resolves: No matching Crossref record was present in this response. Source: Crossref; license: CC0 metadata
not scoredDirectory of Open Access Journals: No matching DOAJ record was present in this response. No allow-list match; this is not evidence of low credibility. Source: DOAJ; license: CC0
not scoredMEDLINE indexed: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredOpenAlex core source: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredKnown publisher allow-list: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredROR affiliation: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredRetraction Watch retraction: No retraction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch expression of concern: No expression of concern notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch correction: No correction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch reinstatement: No reinstatement notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
supportingOpen access status: Normalized open-access status: open. Source: Normalized work metadata; license: Caller-provided; provenance license not supplied to scorer
not scoredPublication license: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredPublication version: A publication version was supplied but is not scored. Source: Normalized work metadata; license: Caller-provided; provenance license not supplied to scorer
cautionMetadata completeness: 5 of 6 scored descriptive metadata groups are present; missing fields increase uncertainty. Source: Normalized work metadata; license: Caller-provided; provenance license not supplied to scorer

Cite this work

BibTeX

@article{allodium:10.1186/s13023-026-04556-3,
  title = {Patient pathways for rare liver diseases: a European template developed by ERN RARE-LIVER.},
  author = {Raevens S and Duijzer R and Fodor A and Johnson MB and Issa N and Pénisson S and Patel S and Bertolini A and Teemer CAJ and Ramier C and Elkrief L and Senzolo M and Hernandez-Gea V and Lohse AW and Procopet B and Drenth JPH and Plessier A},
  year = {2026},
  journal = {Orphanet journal of rare diseases},
  doi = {10.1186/s13023-026-04556-3},
  url = {https://doi.org/10.1186/s13023-026-04556-3}
}

RIS

TY  - JOUR
TI  - Patient pathways for rare liver diseases: a European template developed by ERN RARE-LIVER.
AU  - Raevens S
AU  - Duijzer R
AU  - Fodor A
AU  - Johnson MB
AU  - Issa N
AU  - Pénisson S
AU  - Patel S
AU  - Bertolini A
AU  - Teemer CAJ
AU  - Ramier C
AU  - Elkrief L
AU  - Senzolo M
AU  - Hernandez-Gea V
AU  - Lohse AW
AU  - Procopet B
AU  - Drenth JPH
AU  - Plessier A
PY  - 2026
JO  - Orphanet journal of rare diseases
DO  - 10.1186/s13023-026-04556-3
UR  - https://doi.org/10.1186/s13023-026-04556-3
ER  -

APA

S, R., R, D., A, F., MB, J., N, I., S, P., S, P., A, B., CAJ, T., C, R., L, E., M, S., V, H., AW, L., B, P., JPH, D., & A, P. (2026). Patient pathways for rare liver diseases: a European template developed by ERN RARE-LIVER.. Orphanet journal of rare diseases. https://doi.org/10.1186/s13023-026-04556-3

Source records

pubmed · retrieved 2026-09-25T17:50:14.920Z