The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project

Nao Hamakawa, Atsushi Kogetsu, Moeko Isono, Chisato Yamasaki, Shirou Manabe, Toshihiro Takeda, Kazumasa Iwamoto, Tomoya Kubota, Joe Barrett, Nathanael Gray, Alison Turner, Harriet Teare, Yukie Imamura, Beverley Anne Yamamoto, Jane Kaye, Michihiro Hide, Masanori P. Takahashi, Yasushi Matsumura, Muhammad Kassim Javaid, Kazuto Kato

Open source

DOI: 10.1186/s40900-021-00253-6
Published: 2021-02-01
Container: Research Involvement and Engagement
Publisher: Springer Science and Business Media LLC
Open access: unknown

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Cite this work

BibTeX

@article{allodium:10.1186/s40900-021-00253-6,
  title = {The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project},
  author = {Nao Hamakawa and Atsushi Kogetsu and Moeko Isono and Chisato Yamasaki and Shirou Manabe and Toshihiro Takeda and Kazumasa Iwamoto and Tomoya Kubota and Joe Barrett and Nathanael Gray and Alison Turner and Harriet Teare and Yukie Imamura and Beverley Anne Yamamoto and Jane Kaye and Michihiro Hide and Masanori P. Takahashi and Yasushi Matsumura and Muhammad Kassim Javaid and Kazuto Kato},
  year = {2021},
  journal = {Research Involvement and Engagement},
  doi = {10.1186/s40900-021-00253-6},
  url = {https://doi.org/10.1186/s40900-021-00253-6}
}

RIS

TY  - JOUR
TI  - The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project
AU  - Nao Hamakawa
AU  - Atsushi Kogetsu
AU  - Moeko Isono
AU  - Chisato Yamasaki
AU  - Shirou Manabe
AU  - Toshihiro Takeda
AU  - Kazumasa Iwamoto
AU  - Tomoya Kubota
AU  - Joe Barrett
AU  - Nathanael Gray
AU  - Alison Turner
AU  - Harriet Teare
AU  - Yukie Imamura
AU  - Beverley Anne Yamamoto
AU  - Jane Kaye
AU  - Michihiro Hide
AU  - Masanori P. Takahashi
AU  - Yasushi Matsumura
AU  - Muhammad Kassim Javaid
AU  - Kazuto Kato
PY  - 2021
JO  - Research Involvement and Engagement
DO  - 10.1186/s40900-021-00253-6
UR  - https://doi.org/10.1186/s40900-021-00253-6
ER  -

APA

Hamakawa, N., Kogetsu, A., Isono, M., Yamasaki, C., Manabe, S., Takeda, T., Iwamoto, K., Kubota, T., Barrett, J., Gray, N., Turner, A., Teare, H., Imamura, Y., Yamamoto, B. A., Kaye, J., Hide, M., Takahashi, M. P., Matsumura, Y., Javaid, M. K., & Kato, K. (2021). The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project. Research Involvement and Engagement. https://doi.org/10.1186/s40900-021-00253-6

Source records

crossref · retrieved 2026-09-26T01:24:02.334Z