Awareness and perceptions of patient and public involvement in rare disease research in Japan: the role of patient advocacy groups and family members.
- DOI
- 10.1186/s40900-026-00955-9
- Published
- 2026 Aug 13
- Container
- Research involvement and engagement
- Publisher
- Not recorded
- Open access
- yes
Credibility signals
limited evidence Score 45/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.
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- cautionMetadata completeness: 5 of 6 scored descriptive metadata groups are present; missing fields increase uncertainty.
Cite this work
BibTeX
@article{allodium:10.1186/s40900-026-00955-9,
title = {Awareness and perceptions of patient and public involvement in rare disease research in Japan: the role of patient advocacy groups and family members.},
author = {Watanabe S and Muto K and Nagai A and Yui H and Kiya Y},
year = {2026},
journal = {Research involvement and engagement},
doi = {10.1186/s40900-026-00955-9},
url = {https://doi.org/10.1186/s40900-026-00955-9}
}RIS
TY - JOUR TI - Awareness and perceptions of patient and public involvement in rare disease research in Japan: the role of patient advocacy groups and family members. AU - Watanabe S AU - Muto K AU - Nagai A AU - Yui H AU - Kiya Y PY - 2026 JO - Research involvement and engagement DO - 10.1186/s40900-026-00955-9 UR - https://doi.org/10.1186/s40900-026-00955-9 ER -
APA
S, W., K, M., A, N., H, Y., & Y, K. (2026). Awareness and perceptions of patient and public involvement in rare disease research in Japan: the role of patient advocacy groups and family members.. Research involvement and engagement. https://doi.org/10.1186/s40900-026-00955-9
Source records
- pubmed · retrieved 2026-09-25T17:33:52.668Z