Patient and public involvement in amyotrophic lateral sclerosis research in Japan: a survey through nationally advertised ALS Café events and a pilot advocacy training program

Takehisa Hirayama, Mari Shibukawa, Harumi Morioka, Makiko Ogawa, Keisuke Yorimoto, Satoru Ebihara, Teppei Sakano, Yohei Iguchi, Masahisa Katsuno, Masashi Aoki, Koji Fujita, Yuishin Izumi, Mitsuya Morita, Ryoichi Nakamura, Naoki Atsuta, Koji Yamanaka, Yuko Kobayakawa, Kota Bokuda, Ikuko Iwata, Ken Sakushima, Keiko Imamura, Hiroshi Tsuda, Yuki Nakayama, Makoto Urushitani, Toshio Shimizu, Seiichi Nagano, Osamu Kano

Open source

DOI: 10.1186/s40900-026-01000-5
Published: 2026-10-30
Container: Research Involvement and Engagement
Publisher: Springer Science and Business Media LLC
Open access: unknown

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Cite this work

BibTeX

@article{allodium:10.1186/s40900-026-01000-5,
  title = {Patient and public involvement in amyotrophic lateral sclerosis research in Japan: a survey through nationally advertised ALS Café events and a pilot advocacy training program},
  author = {Takehisa Hirayama and Mari Shibukawa and Harumi Morioka and Makiko Ogawa and Keisuke Yorimoto and Satoru Ebihara and Teppei Sakano and Yohei Iguchi and Masahisa Katsuno and Masashi Aoki and Koji Fujita and Yuishin Izumi and Mitsuya Morita and Ryoichi Nakamura and Naoki Atsuta and Koji Yamanaka and Yuko Kobayakawa and Kota Bokuda and Ikuko Iwata and Ken Sakushima and Keiko Imamura and Hiroshi Tsuda and Yuki Nakayama and Makoto Urushitani and Toshio Shimizu and Seiichi Nagano and Osamu Kano},
  year = {2026},
  journal = {Research Involvement and Engagement},
  doi = {10.1186/s40900-026-01000-5},
  url = {https://doi.org/10.1186/s40900-026-01000-5}
}

RIS

TY  - JOUR
TI  - Patient and public involvement in amyotrophic lateral sclerosis research in Japan: a survey through nationally advertised ALS Café events and a pilot advocacy training program
AU  - Takehisa Hirayama
AU  - Mari Shibukawa
AU  - Harumi Morioka
AU  - Makiko Ogawa
AU  - Keisuke Yorimoto
AU  - Satoru Ebihara
AU  - Teppei Sakano
AU  - Yohei Iguchi
AU  - Masahisa Katsuno
AU  - Masashi Aoki
AU  - Koji Fujita
AU  - Yuishin Izumi
AU  - Mitsuya Morita
AU  - Ryoichi Nakamura
AU  - Naoki Atsuta
AU  - Koji Yamanaka
AU  - Yuko Kobayakawa
AU  - Kota Bokuda
AU  - Ikuko Iwata
AU  - Ken Sakushima
AU  - Keiko Imamura
AU  - Hiroshi Tsuda
AU  - Yuki Nakayama
AU  - Makoto Urushitani
AU  - Toshio Shimizu
AU  - Seiichi Nagano
AU  - Osamu Kano
PY  - 2026
JO  - Research Involvement and Engagement
DO  - 10.1186/s40900-026-01000-5
UR  - https://doi.org/10.1186/s40900-026-01000-5
ER  -

APA

Hirayama, T., Shibukawa, M., Morioka, H., Ogawa, M., Yorimoto, K., Ebihara, S., Sakano, T., Iguchi, Y., Katsuno, M., Aoki, M., Fujita, K., Izumi, Y., Morita, M., Nakamura, R., Atsuta, N., Yamanaka, K., Kobayakawa, Y., Bokuda, K., Iwata, I., Sakushima, K., Imamura, K., Tsuda, H., Nakayama, Y., Urushitani, M., Shimizu, T., Nagano, S., & Kano, O. (2026). Patient and public involvement in amyotrophic lateral sclerosis research in Japan: a survey through nationally advertised ALS Café events and a pilot advocacy training program. Research Involvement and Engagement. https://doi.org/10.1186/s40900-026-01000-5

Source records

crossref · retrieved 2026-11-10T13:48:31.280Z