Development and initial validation of the Communication Inventory Disability – Observer Reported (CID-OR): a measure of communication in CDKL5 deficiency disorder

Jenny Downs, Jessica Keeley, Peter Jacoby, Sofia Benson-Goldberg, Sarah Pillar, Andrea Miele, Helen Leonard, Jacinta Saldaris, Eric D. Marsh, Tim A. Benke, Scott T. Demarest

Open source

DOI
10.1186/s41687-025-00977-z
Published
2025-12-09
Container
Journal of Patient-Reported Outcomes
Publisher
Springer Science and Business Media LLC
Open access
unknown

Credibility signals

uncertain Score 64/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.

Show all credibility signals

Cite this work

BibTeX

@article{allodium:10.1186/s41687-025-00977-z,
  title = {Development and initial validation of the Communication Inventory Disability – Observer Reported (CID-OR): a measure of communication in CDKL5 deficiency disorder},
  author = {Jenny Downs and Jessica Keeley and Peter Jacoby and Sofia Benson-Goldberg and Sarah Pillar and Andrea Miele and Helen Leonard and Jacinta Saldaris and Eric D. Marsh and Tim A. Benke and Scott T. Demarest},
  year = {2025},
  journal = {Journal of Patient-Reported Outcomes},
  doi = {10.1186/s41687-025-00977-z},
  url = {https://doi.org/10.1186/s41687-025-00977-z}
}

RIS

TY  - JOUR
TI  - Development and initial validation of the Communication Inventory Disability – Observer Reported (CID-OR): a measure of communication in CDKL5 deficiency disorder
AU  - Jenny Downs
AU  - Jessica Keeley
AU  - Peter Jacoby
AU  - Sofia Benson-Goldberg
AU  - Sarah Pillar
AU  - Andrea Miele
AU  - Helen Leonard
AU  - Jacinta Saldaris
AU  - Eric D. Marsh
AU  - Tim A. Benke
AU  - Scott T. Demarest
PY  - 2025
JO  - Journal of Patient-Reported Outcomes
DO  - 10.1186/s41687-025-00977-z
UR  - https://doi.org/10.1186/s41687-025-00977-z
ER  - 

APA

Downs, J., Keeley, J., Jacoby, P., Benson-Goldberg, S., Pillar, S., Miele, A., Leonard, H., Saldaris, J., Marsh, E. D., Benke, T. A., & Demarest, S. T. (2025). Development and initial validation of the Communication Inventory Disability – Observer Reported (CID-OR): a measure of communication in CDKL5 deficiency disorder. Journal of Patient-Reported Outcomes. https://doi.org/10.1186/s41687-025-00977-z

Source records