Development, Implementation, and Preliminary Results of a Novel Social Network for Rare Disease Communities: Mixed Methods Study
- DOI
- 10.2196/80230
- Published
- 5
- Container
- JMIR Human Factors
- Publisher
- Not recorded
- Open access
- yes
Credibility signals
uncertain Score 53/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.
Show all credibility signals
- cautionDOI registered: No matching Crossref record was present in this response.
- cautionDOI resolves: No matching Crossref record was present in this response.
- supportingDirectory of Open Access Journals: A matching record was returned by DOAJ.
- not scoredMEDLINE indexed: Not checked or no result supplied; no credibility inference made.
- not scoredOpenAlex core source: Not checked or no result supplied; no credibility inference made.
- not scoredKnown publisher allow-list: Not checked or no result supplied; no credibility inference made.
- not scoredROR affiliation: Not checked or no result supplied; no credibility inference made.
- not scoredRetraction Watch retraction: No retraction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch expression of concern: No expression of concern notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch correction: No correction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch reinstatement: No reinstatement notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- supportingOpen access status: Normalized open-access status: open.
- not scoredPublication license: Not checked or no result supplied; no credibility inference made.
- not scoredPublication version: A publication version was supplied but is not scored.
- cautionMetadata completeness: 5 of 6 scored descriptive metadata groups are present; missing fields increase uncertainty.
Cite this work
BibTeX
@article{allodium:10.2196/80230,
title = {Development, Implementation, and Preliminary Results of a Novel Social Network for Rare Disease Communities: Mixed Methods Study},
author = {Lara Fendrich and Henriette Högl and Ralf Schmidt and David Bascom and Armin Berger and Max Lübbering and Gundula Ernst and Justus Schumacher and Sabrina Hölzer and Lorenz Grigull},
year = {2026},
journal = {JMIR Human Factors},
doi = {10.2196/80230},
url = {https://doi.org/10.2196/80230}
}RIS
TY - JOUR TI - Development, Implementation, and Preliminary Results of a Novel Social Network for Rare Disease Communities: Mixed Methods Study AU - Lara Fendrich AU - Henriette Högl AU - Ralf Schmidt AU - David Bascom AU - Armin Berger AU - Max Lübbering AU - Gundula Ernst AU - Justus Schumacher AU - Sabrina Hölzer AU - Lorenz Grigull PY - 2026 JO - JMIR Human Factors DO - 10.2196/80230 UR - https://doi.org/10.2196/80230 ER -
APA
Fendrich, L., Högl, H., Schmidt, R., Bascom, D., Berger, A., Lübbering, M., Ernst, G., Schumacher, J., Hölzer, S., & Grigull, L. (2026). Development, Implementation, and Preliminary Results of a Novel Social Network for Rare Disease Communities: Mixed Methods Study. JMIR Human Factors. https://doi.org/10.2196/80230
Source records
- doaj · retrieved 2026-09-26T05:55:01.488Z