A Personal Health App and Wearable Co-Design Framework for Rare and Complex Diseases: User-Centered, Collaborative Co-Design Study

Sarah Margaret Goodday, Emma Karlin, Madeleine Sorensen, Robin Yang, Paul Gordon, Caresse Opoku, Daniel Vuong, Jenee Wilson, Diane McKenzie, Jules Piccotti, Massimiliano Tavanti, Megan Fitzgerald, Yochai Re'em, Hannah Wei, Megan Golden, Daniel Morgan, Michele Manion, Ricardo Mosquera, Tricha Shivas, Elise Hoover, Allison Peck, Nathan Peck, Zollie Yavarow, Heidi Bjornson-Pennell, Andra Stratton, Samali Anova Sahoo, Douglas Arbittier, Elizabeth Arbittier, Renee Goff, Donna Harvin-Graham, Nancy Howard, Camille Knudsen, Mary Oldham, Stephen Friend

Open source

DOI: 10.2196/85425
Published: 2026-07-20
Container: JMIR mHealth and uHealth
Publisher: JMIR Publications Inc.
Open access: unknown

Credibility signals

uncertain Score 64/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.

Show all credibility signals

supportingDOI registered: A matching record was returned by Crossref. Source: Crossref; license: CC0 metadata
supportingDOI resolves: A matching record was returned by Crossref. Source: Crossref; license: CC0 metadata
not scoredDirectory of Open Access Journals: No matching DOAJ record was present in this response. No allow-list match; this is not evidence of low credibility. Source: DOAJ; license: CC0
not scoredMEDLINE indexed: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredOpenAlex core source: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredKnown publisher allow-list: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredROR affiliation: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredRetraction Watch retraction: No retraction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch expression of concern: No expression of concern notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch correction: No correction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch reinstatement: No reinstatement notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredOpen access status: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredPublication license: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredPublication version: A publication version was supplied but is not scored. Source: Normalized work metadata; license: Caller-provided; provenance license not supplied to scorer
supportingMetadata completeness: All 6 scored descriptive metadata groups are present. Source: Normalized work metadata; license: Caller-provided; provenance license not supplied to scorer

Cite this work

BibTeX

@article{allodium:10.2196/85425,
  title = {A Personal Health App and Wearable Co-Design Framework for Rare and Complex Diseases: User-Centered, Collaborative Co-Design Study},
  author = {Sarah Margaret Goodday and Emma Karlin and Madeleine Sorensen and Robin Yang and Paul Gordon and Caresse Opoku and Daniel Vuong and Jenee Wilson and Diane McKenzie and Jules Piccotti and Massimiliano Tavanti and Megan Fitzgerald and Yochai Re'em and Hannah Wei and Megan Golden and Daniel Morgan and Michele Manion and Ricardo Mosquera and Tricha Shivas and Elise Hoover and Allison Peck and Nathan Peck and Zollie Yavarow and Heidi Bjornson-Pennell and Andra Stratton and Samali Anova Sahoo and Douglas Arbittier and Elizabeth Arbittier and Renee Goff and Donna Harvin-Graham and Nancy Howard and Camille Knudsen and Mary Oldham and Stephen Friend},
  year = {2026},
  journal = {JMIR mHealth and uHealth},
  doi = {10.2196/85425},
  url = {https://doi.org/10.2196/85425}
}

RIS

TY  - JOUR
TI  - A Personal Health App and Wearable Co-Design Framework for Rare and Complex Diseases: User-Centered, Collaborative Co-Design Study
AU  - Sarah Margaret Goodday
AU  - Emma Karlin
AU  - Madeleine Sorensen
AU  - Robin Yang
AU  - Paul Gordon
AU  - Caresse Opoku
AU  - Daniel Vuong
AU  - Jenee Wilson
AU  - Diane McKenzie
AU  - Jules Piccotti
AU  - Massimiliano Tavanti
AU  - Megan Fitzgerald
AU  - Yochai Re'em
AU  - Hannah Wei
AU  - Megan Golden
AU  - Daniel Morgan
AU  - Michele Manion
AU  - Ricardo Mosquera
AU  - Tricha Shivas
AU  - Elise Hoover
AU  - Allison Peck
AU  - Nathan Peck
AU  - Zollie Yavarow
AU  - Heidi Bjornson-Pennell
AU  - Andra Stratton
AU  - Samali Anova Sahoo
AU  - Douglas Arbittier
AU  - Elizabeth Arbittier
AU  - Renee Goff
AU  - Donna Harvin-Graham
AU  - Nancy Howard
AU  - Camille Knudsen
AU  - Mary Oldham
AU  - Stephen Friend
PY  - 2026
JO  - JMIR mHealth and uHealth
DO  - 10.2196/85425
UR  - https://doi.org/10.2196/85425
ER  -

APA

Goodday, S. M., Karlin, E., Sorensen, M., Yang, R., Gordon, P., Opoku, C., Vuong, D., Wilson, J., McKenzie, D., Piccotti, J., Tavanti, M., Fitzgerald, M., Re'em, Y., Wei, H., Golden, M., Morgan, D., Manion, M., Mosquera, R., Shivas, T., Hoover, E., Peck, A., Peck, N., Yavarow, Z., Bjornson-Pennell, H., Stratton, A., Sahoo, S. A., Arbittier, D., Arbittier, E., Goff, R., Harvin-Graham, D., Howard, N., Knudsen, C., Oldham, M., & Friend, S. (2026). A Personal Health App and Wearable Co-Design Framework for Rare and Complex Diseases: User-Centered, Collaborative Co-Design Study. JMIR mHealth and uHealth. https://doi.org/10.2196/85425

Source records

crossref · retrieved 2026-09-25T02:26:29.778Z