Closing the Gap to Interventions for Tuberous Sclerosis Complex-Associated Neuropsychiatric Disorders (TAND): Protocol for a Longitudinal Study of TAND Severity, Predictors, and Caregiver Well-Being (TANDem-2).

de Vries PJ, Chambers N, Campbell E, Gutierrez-Lafrentz L, Heunis TM, Schlebusch L, Beaure d'Augères G, Bissell S, Byars A, Capal J, Cardozo L, Cukier S, Davis P, Epstein NB, Fladrowski C, Flinn J, Gipson T, Goy SL, Kingswood JC, Krueger D, Little F, Lubbe S, Mitchell R, Rozenberg M, Sahin M, Silva M, Smith C, Srivastava S, Takei M, van Eeghen A, Vasseghi M, Wagenaar JP, Waltereit R, De Waele L, Jansen AC

Open source

DOI: 10.2196/91726
Published: 2026 May 5
Container: JMIR research protocols
Publisher: Not recorded
Open access: yes

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Cite this work

BibTeX

@article{allodium:10.2196/91726,
  title = {Closing the Gap to Interventions for Tuberous Sclerosis Complex-Associated Neuropsychiatric Disorders (TAND): Protocol for a Longitudinal Study of TAND Severity, Predictors, and Caregiver Well-Being (TANDem-2).},
  author = {de Vries PJ and Chambers N and Campbell E and Gutierrez-Lafrentz L and Heunis TM and Schlebusch L and Beaure d'Augères G and Bissell S and Byars A and Capal J and Cardozo L and Cukier S and Davis P and Epstein NB and Fladrowski C and Flinn J and Gipson T and Goy SL and Kingswood JC and Krueger D and Little F and Lubbe S and Mitchell R and Rozenberg M and Sahin M and Silva M and Smith C and Srivastava S and Takei M and van Eeghen A and Vasseghi M and Wagenaar JP and Waltereit R and De Waele L and Jansen AC},
  year = {2026},
  journal = {JMIR research protocols},
  doi = {10.2196/91726},
  url = {https://doi.org/10.2196/91726}
}

RIS

TY  - JOUR
TI  - Closing the Gap to Interventions for Tuberous Sclerosis Complex-Associated Neuropsychiatric Disorders (TAND): Protocol for a Longitudinal Study of TAND Severity, Predictors, and Caregiver Well-Being (TANDem-2).
AU  - de Vries PJ
AU  - Chambers N
AU  - Campbell E
AU  - Gutierrez-Lafrentz L
AU  - Heunis TM
AU  - Schlebusch L
AU  - Beaure d'Augères G
AU  - Bissell S
AU  - Byars A
AU  - Capal J
AU  - Cardozo L
AU  - Cukier S
AU  - Davis P
AU  - Epstein NB
AU  - Fladrowski C
AU  - Flinn J
AU  - Gipson T
AU  - Goy SL
AU  - Kingswood JC
AU  - Krueger D
AU  - Little F
AU  - Lubbe S
AU  - Mitchell R
AU  - Rozenberg M
AU  - Sahin M
AU  - Silva M
AU  - Smith C
AU  - Srivastava S
AU  - Takei M
AU  - van Eeghen A
AU  - Vasseghi M
AU  - Wagenaar JP
AU  - Waltereit R
AU  - De Waele L
AU  - Jansen AC
PY  - 2026
JO  - JMIR research protocols
DO  - 10.2196/91726
UR  - https://doi.org/10.2196/91726
ER  -

APA

PJ, D. V., N, C., E, C., L, G., TM, H., L, S., G, B. D., S, B., A, B., J, C., L, C., S, C., P, D., NB, E., C, F., J, F., T, G., SL, G., JC, K., D, K., F, L., S, L., R, M., M, R., M, S., M, S., C, S., S, S., M, T., A, V. E., M, V., JP, W., R, W., L, D. W., & AC, J. (2026). Closing the Gap to Interventions for Tuberous Sclerosis Complex-Associated Neuropsychiatric Disorders (TAND): Protocol for a Longitudinal Study of TAND Severity, Predictors, and Caregiver Well-Being (TANDem-2).. JMIR research protocols. https://doi.org/10.2196/91726

Source records

pubmed · retrieved 2026-09-25T01:33:53.543Z
europe-pmc · retrieved 2026-09-25T01:33:53.558Z
doaj · retrieved 2026-09-25T01:33:53.549Z