Development and Validation of the Idiopathic Multicentric Castleman Disease Symptom Burden Scale (ISBUS): Protocol for an International Multistage Mixed Methods Study

Philip A Powell, Anju Keetharuth, Sé Maria Frances, Jill Carlton, Kelly Makarounas-Kirchmann, Antonio Adolfo Guerra Soares Brandão, Karthik Ramasamy, Francis Shupo, Kelley C Dacus, Corey Casper, David C Fajgenbaum, Yeow Goh, Frits van Rhee, Pier Luigi Zinzani, Éric Oksenhendler, Lu Zhang, Sudipto Mukherjee

Open source

DOI: 10.2196/96022
Published: 2026-08-11
Container: JMIR Research Protocols
Publisher: JMIR Publications Inc.
Open access: unknown

Credibility signals

uncertain Score 64/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.

Show all credibility signals

supportingDOI registered: A matching record was returned by Crossref. Source: Crossref; license: CC0 metadata
supportingDOI resolves: A matching record was returned by Crossref. Source: Crossref; license: CC0 metadata
not scoredDirectory of Open Access Journals: No matching DOAJ record was present in this response. No allow-list match; this is not evidence of low credibility. Source: DOAJ; license: CC0
not scoredMEDLINE indexed: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredOpenAlex core source: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredKnown publisher allow-list: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredROR affiliation: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredRetraction Watch retraction: No retraction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch expression of concern: No expression of concern notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch correction: No correction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredRetraction Watch reinstatement: No reinstatement notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete. Source: Retraction Watch; license: CC BY 4.0
not scoredOpen access status: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredPublication license: Not checked or no result supplied; no credibility inference made. Source: No authority result supplied; license: Unknown
not scoredPublication version: A publication version was supplied but is not scored. Source: Normalized work metadata; license: Caller-provided; provenance license not supplied to scorer
supportingMetadata completeness: All 6 scored descriptive metadata groups are present. Source: Normalized work metadata; license: Caller-provided; provenance license not supplied to scorer

Cite this work

BibTeX

@article{allodium:10.2196/96022,
  title = {Development and Validation of the Idiopathic Multicentric Castleman Disease Symptom Burden Scale (ISBUS): Protocol for an International Multistage Mixed Methods Study},
  author = {Philip A Powell and Anju Keetharuth and Sé Maria Frances and Jill Carlton and Kelly Makarounas-Kirchmann and Antonio Adolfo Guerra Soares Brandão and Karthik Ramasamy and Francis Shupo and Kelley C Dacus and Corey Casper and David C Fajgenbaum and Yeow Goh and Frits van Rhee and Pier Luigi Zinzani and Éric Oksenhendler and Lu Zhang and Sudipto Mukherjee},
  year = {2026},
  journal = {JMIR Research Protocols},
  doi = {10.2196/96022},
  url = {https://doi.org/10.2196/96022}
}

RIS

TY  - JOUR
TI  - Development and Validation of the Idiopathic Multicentric Castleman Disease Symptom Burden Scale (ISBUS): Protocol for an International Multistage Mixed Methods Study
AU  - Philip A Powell
AU  - Anju Keetharuth
AU  - Sé Maria Frances
AU  - Jill Carlton
AU  - Kelly Makarounas-Kirchmann
AU  - Antonio Adolfo Guerra Soares Brandão
AU  - Karthik Ramasamy
AU  - Francis Shupo
AU  - Kelley C Dacus
AU  - Corey Casper
AU  - David C Fajgenbaum
AU  - Yeow Goh
AU  - Frits van Rhee
AU  - Pier Luigi Zinzani
AU  - Éric Oksenhendler
AU  - Lu Zhang
AU  - Sudipto Mukherjee
PY  - 2026
JO  - JMIR Research Protocols
DO  - 10.2196/96022
UR  - https://doi.org/10.2196/96022
ER  -

APA

Powell, P. A., Keetharuth, A., Frances, S. M., Carlton, J., Makarounas-Kirchmann, K., Brandão, A. A. G. S., Ramasamy, K., Shupo, F., Dacus, K. C., Casper, C., Fajgenbaum, D. C., Goh, Y., Rhee, F. V., Zinzani, P. L., Oksenhendler, É., Zhang, L., & Mukherjee, S. (2026). Development and Validation of the Idiopathic Multicentric Castleman Disease Symptom Burden Scale (ISBUS): Protocol for an International Multistage Mixed Methods Study. JMIR Research Protocols. https://doi.org/10.2196/96022

Source records

crossref · retrieved 2026-09-25T01:32:52.107Z