Building a National Interoperable Rare Eye Disease Data Warehouse: Methodological Framework and Implementation Report From the French Rare Eye Disease Database (FREDD) Initiative.
- DOI
- 10.2196/99206
- Published
- 2026 Aug 25
- Container
- JMIR medical informatics
- Publisher
- Not recorded
- Open access
- yes
Credibility signals
uncertain Score 53/100 under policy 1.0.0. This is a metadata assessment, not a judgment of the paper's conclusions.
Show all credibility signals
- cautionDOI registered: No matching Crossref record was present in this response.
- cautionDOI resolves: No matching Crossref record was present in this response.
- supportingDirectory of Open Access Journals: A matching record was returned by DOAJ.
- not scoredMEDLINE indexed: Not checked or no result supplied; no credibility inference made.
- not scoredOpenAlex core source: Not checked or no result supplied; no credibility inference made.
- not scoredKnown publisher allow-list: Not checked or no result supplied; no credibility inference made.
- not scoredROR affiliation: Not checked or no result supplied; no credibility inference made.
- not scoredRetraction Watch retraction: No retraction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch expression of concern: No expression of concern notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch correction: No correction notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- not scoredRetraction Watch reinstatement: No reinstatement notice matched this DOI in the deployed snapshot. No matching event found; coverage may be incomplete.
- supportingOpen access status: Normalized open-access status: open.
- not scoredPublication license: Not checked or no result supplied; no credibility inference made.
- not scoredPublication version: A publication version was supplied but is not scored.
- cautionMetadata completeness: 5 of 6 scored descriptive metadata groups are present; missing fields increase uncertainty.
Cite this work
BibTeX
@article{allodium:10.2196/99206,
title = {Building a National Interoperable Rare Eye Disease Data Warehouse: Methodological Framework and Implementation Report From the French Rare Eye Disease Database (FREDD) Initiative.},
author = {Beluffi Marin C and Oswald M and Ratenet L and Stoll M and Chennen K and Chabin N and Hubert J and Rey G and Le Meur G and Smirnov V and Meunier I and Audo I and Dollfus H},
year = {2026},
journal = {JMIR medical informatics},
doi = {10.2196/99206},
url = {https://doi.org/10.2196/99206}
}RIS
TY - JOUR TI - Building a National Interoperable Rare Eye Disease Data Warehouse: Methodological Framework and Implementation Report From the French Rare Eye Disease Database (FREDD) Initiative. AU - Beluffi Marin C AU - Oswald M AU - Ratenet L AU - Stoll M AU - Chennen K AU - Chabin N AU - Hubert J AU - Rey G AU - Le Meur G AU - Smirnov V AU - Meunier I AU - Audo I AU - Dollfus H PY - 2026 JO - JMIR medical informatics DO - 10.2196/99206 UR - https://doi.org/10.2196/99206 ER -
APA
C, B. M., M, O., L, R., M, S., K, C., N, C., J, H., G, R., G, L. M., V, S., I, M., I, A., & H, D. (2026). Building a National Interoperable Rare Eye Disease Data Warehouse: Methodological Framework and Implementation Report From the French Rare Eye Disease Database (FREDD) Initiative.. JMIR medical informatics. https://doi.org/10.2196/99206
Source records
- pubmed · retrieved 2026-09-25T10:32:45.880Z
- europe-pmc · retrieved 2026-09-25T10:32:45.893Z
- doaj · retrieved 2026-09-25T10:32:45.883Z