Optimizing a Personalized Health Approach for Virtually Treating High-Risk Caregivers of Children With Neurogenetic Conditions (Project WellCAST): Protocol for a Randomized Controlled Trial

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This protocol outlines a randomized controlled trial evaluating a personalized health decision tree algorithm and peer coaching to match high-risk caregivers of children with neurogenetic conditions to appropriate telehealth interventions. The study compares algorithm-assigned support programs against quasi-random assignment and waitlist controls, while also testing the efficacy of motivational peer-to-peer coaching versus standard staff check-ins. It is designed for researchers and clinicians interested in digital health methodologies and precision medicine approaches for caregiver mental health.

ID
705bf292e17a4039
Source org
PubMed Central
Author
Bridgette Kelleher (Purdue University West Lafayette), Kaleb Emerson (Purdue University West Lafayette), Lyndsey Graham (Purdue University West Lafayette), Veronika Vozka (Purdue University West Lafayette), Anne Wheeler (RTI International), William F. Fadel (Indiana University – Purdue University Indianapolis), Dan Foti (Purdue University West Lafayette), Isha W. Metzger (Georgia State University), Mandy Rispoli (University of Virginia), Wendy Machalicek (University of Oregon), Laurie McLay (University of Canterbury), Sean P. Lane (University of Missouri), Wei Siong Neo (Purdue University West Lafayette), Allie Carter (Indiana University – Purdue University Indianapolis), Lisa Brown (Purdue University West Lafayette), Jennifer L. Brown (Purdue University West Lafayette), Laura Lee McIntyre (University of Oregon), Elizabeth Salwitz (Purdue University West Lafayette), Gloria Dietz (Purdue University West Lafayette), Riley Naughton (Purdue University West Lafayette), Katlyn Peek (Purdue University West Lafayette), Nicole A. Hollins (University of Virginia), Emma Woodford (University of Canterbury)
Published
2025-05-02
OA status
gold
DOI
10.2196/64360
PMID
Not recorded
PMCID
Not recorded
Citations
0

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BibTeX

@article{allodium:705bf292e17a4039,
  title = {Optimizing a Personalized Health Approach for Virtually Treating High-Risk Caregivers of Children With Neurogenetic Conditions (Project WellCAST): Protocol for a Randomized Controlled Trial},
  author = {Bridgette Kelleher and Kaleb Emerson and Lyndsey Graham and Veronika Vozka and Anne Wheeler and William F. Fadel and Dan Foti and Isha W. Metzger and Mandy Rispoli and Wendy Machalicek and Laurie McLay and Sean P. Lane and Wei Siong Neo and Allie Carter and Lisa Brown and Jennifer L. Brown and Laura Lee McIntyre and Elizabeth Salwitz and Gloria Dietz and Riley Naughton and Katlyn Peek and Nicole A. Hollins and Emma Woodford},
  year = {2025},
  journal = {PubMed Central},
  doi = {10.2196/64360},
  url = {https://doi.org/10.2196/64360}
}

RIS

TY  - JOUR
TI  - Optimizing a Personalized Health Approach for Virtually Treating High-Risk Caregivers of Children With Neurogenetic Conditions (Project WellCAST): Protocol for a Randomized Controlled Trial
AU  - Kelleher, Bridgette
AU  - Emerson, Kaleb
AU  - Graham, Lyndsey
AU  - Vozka, Veronika
AU  - Wheeler, Anne
AU  - Fadel, William F.
AU  - Foti, Dan
AU  - Metzger, Isha W.
AU  - Rispoli, Mandy
AU  - Machalicek, Wendy
AU  - McLay, Laurie
AU  - Lane, Sean P.
AU  - Neo, Wei Siong
AU  - Carter, Allie
AU  - Brown, Lisa
AU  - Brown, Jennifer L.
AU  - McIntyre, Laura Lee
AU  - Salwitz, Elizabeth
AU  - Dietz, Gloria
AU  - Naughton, Riley
AU  - Peek, Katlyn
AU  - Hollins, Nicole A.
AU  - Woodford, Emma
PY  - 2025
PB  - PubMed Central
DO  - 10.2196/64360
UR  - https://doi.org/10.2196/64360
ER  -

APA

Kelleher, B., Emerson, K., Graham, L., Vozka, V., Wheeler, A., Fadel, W. F., Foti, D., Metzger, I. W., Rispoli, M., Machalicek, W., McLay, L., Lane, S. P., Neo, W. S., Carter, A., Brown, L., Brown, J. L., McIntyre, L. L., Salwitz, E., Dietz, G., Naughton, R., Peek, K., Hollins, N. A., & Woodford, E. (2025). Optimizing a Personalized Health Approach for Virtually Treating High-Risk Caregivers of Children With Neurogenetic Conditions (Project WellCAST): Protocol for a Randomized Controlled Trial. PubMed Central. https://doi.org/10.2196/64360

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