Cystic fibrosis mental health and wellness questionnaire – factors and properties of a comprehensive CF-specific self-report measure

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This paper introduces the CF Mental Health and Wellness Questionnaire (CFMHWQ), a 25-item self-report measure designed to assess mental health burden specific to cystic fibrosis, addressing limitations in existing generic tools. The study validates the instrument through principal component analysis on data from 123 individuals, identifying five factors related to role concerns, symptom burden, social impairment, compliance, and coping. It reports correlations between these factors and measures of negative affect and psychological flexibility, noting that older age was associated with better behavioral adherence.

ID
edaf80c1fe2a4687
Source org
PubMed Central
Author
C. Virginia O’Hayer (Thomas Jefferson University Hospital), Patrick J. Smith (University of North Carolina at Chapel Hill), Max J. Genecov (Thomas Jefferson University Hospital), Christopher F. Drescher (Augusta University Health), Heather Bruschwein (University of Virginia), Chelsi N Nurse (Thomas Jefferson University Hospital), Katherine Lawliss (Quincy University), Darcy C. Esiason (Institute for Behavioral Medicine), Gunnar H. Esiason (Boomer Esiason Foundation)
Published
2026-05-05
OA status
gold
DOI
10.1080/20018525.2026.2670025
PMID
Not recorded
PMCID
Not recorded
Citations
0

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BibTeX

@article{allodium:edaf80c1fe2a4687,
  title = {Cystic fibrosis mental health and wellness questionnaire – factors and properties of a comprehensive CF-specific self-report measure},
  author = {C. Virginia O’Hayer and Patrick J. Smith and Max J. Genecov and Christopher F. Drescher and Heather Bruschwein and Chelsi N Nurse and Katherine Lawliss and Darcy C. Esiason and Gunnar H. Esiason},
  year = {2026},
  journal = {PubMed Central},
  doi = {10.1080/20018525.2026.2670025},
  url = {https://doi.org/10.1080/20018525.2026.2670025}
}

RIS

TY  - JOUR
TI  - Cystic fibrosis mental health and wellness questionnaire – factors and properties of a comprehensive CF-specific self-report measure
AU  - O’Hayer, C. Virginia
AU  - Smith, Patrick J.
AU  - Genecov, Max J.
AU  - Drescher, Christopher F.
AU  - Bruschwein, Heather
AU  - Nurse, Chelsi N
AU  - Lawliss, Katherine
AU  - Esiason, Darcy C.
AU  - Esiason, Gunnar H.
PY  - 2026
PB  - PubMed Central
DO  - 10.1080/20018525.2026.2670025
UR  - https://doi.org/10.1080/20018525.2026.2670025
ER  -

APA

O’Hayer, C. V., Smith, P. J., Genecov, M. J., Drescher, C. F., Bruschwein, H., Nurse, C. N., Lawliss, K., Esiason, D. C., & Esiason, G. H. (2026). Cystic fibrosis mental health and wellness questionnaire – factors and properties of a comprehensive CF-specific self-report measure. PubMed Central. https://doi.org/10.1080/20018525.2026.2670025

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