Tailoring acceptance and commitment therapy for parents of children with undiagnosed conditions: a qualitative pre-implementation study

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This qualitative pre-implementation study explores the psychosocial needs of parents raising children with undiagnosed conditions to inform the design of a tailored Acceptance and Commitment Therapy (ACT) intervention. Through interviews with 18 participants, the authors identify isolation and inadequate prior mental health support as key challenges, while noting that participants value ACT's focus on values alignment but require accessible, flexible group formats. The resource outlines anticipated barriers and facilitators for this population to guide future pilot implementation studies.

ID
f36dc9a85ca74d80
Source org
PubMed Central
Author
Sarah Rutzick (Northwestern University), Sharon Aufox (Northwestern University), Elizabeth Borto (Northwestern University), Erika Lawrence (Northwestern University), Kelli Scott (Northwestern University), Rowan Forbes Shepherd (National Institutes of Health), Carly Rasmussen (Lurie Children's Hospital), Jennifer L Young (Northwestern University)
Published
2026-05-02
OA status
gold
DOI
10.1186/s13023-026-04355-w
PMID
Not recorded
PMCID
Not recorded
Citations
0

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BibTeX

@article{allodium:f36dc9a85ca74d80,
  title = {Tailoring acceptance and commitment therapy for parents of children with undiagnosed conditions: a qualitative pre-implementation study},
  author = {Sarah Rutzick and Sharon Aufox and Elizabeth Borto and Erika Lawrence and Kelli Scott and Rowan Forbes Shepherd and Carly Rasmussen and Jennifer L Young},
  year = {2026},
  journal = {PubMed Central},
  doi = {10.1186/s13023-026-04355-w},
  url = {https://doi.org/10.1186/s13023-026-04355-w}
}

RIS

TY  - JOUR
TI  - Tailoring acceptance and commitment therapy for parents of children with undiagnosed conditions: a qualitative pre-implementation study
AU  - Rutzick, Sarah
AU  - Aufox, Sharon
AU  - Borto, Elizabeth
AU  - Lawrence, Erika
AU  - Scott, Kelli
AU  - Shepherd, Rowan Forbes
AU  - Rasmussen, Carly
AU  - Young, Jennifer L
PY  - 2026
PB  - PubMed Central
DO  - 10.1186/s13023-026-04355-w
UR  - https://doi.org/10.1186/s13023-026-04355-w
ER  -

APA

Rutzick, S., Aufox, S., Borto, E., Lawrence, E., Scott, K., Shepherd, R. F., Rasmussen, C., & Young, J. L. (2026). Tailoring acceptance and commitment therapy for parents of children with undiagnosed conditions: a qualitative pre-implementation study. PubMed Central. https://doi.org/10.1186/s13023-026-04355-w

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